Co-design of the Transgender Health Information Resource: Web-Based Participatory Design.
Co-design of the Transgender Health Information Resource: Web-Based Participatory Design.
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DOI：
10.2196/38078
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发表时间：
2023-01-10
影响因子：
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通讯作者：
Schilling, Lisa M
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文献类型：
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作者：
Morse, Brad;Soares, Andrey;Ytell, Kate;DeSanto, Kristen;Allen, Marvyn;Holliman, Brooke Dorsey;Lee, Rita S;Kwan, Bethany M;Schilling, Lisa M
在跨性别和性别多样性（TGD）社区内，迫切需要获得可靠的健康信息。目前，TGD个人经常通过审查社交媒体帖子来寻求并必须找到相关资源。通过移动的手机应用程序提供可访问且可信的健康相关资源和内容的资源可能会对TGD人群产生积极影响并提供支持。COVID-19的居家命令迫使参与式设计中使用的方法发生了变化。在本文中，我们的目的是描述基于网络的参与式方法来开发跨性别健康信息资源。我们还描述了在整个设计过程的单个会话期间发生的基于Web的参与并对其进行了表征。我们计划并开展了基于网络的设计会议，以取代拟议的面对面会议。我们使用基于网络的协作工具，包括Zoom（Zoom Video Communications）、Mural（Mural）、REDCap（Research Electronic Data Capture;范德比尔特大学）和Justinmind（Justinmind），让参与者参与设计过程。Zoom被用作设计活动的集成平台。壁画被用来进行练习，如自由列表，头脑风暴和分组。REDCap允许我们收集调查响应。Justinmind被用来创建原型，并通过Zoom进行分享和讨论。招募工作由我们的社区合作伙伴之一One科罗拉多领导，他使用Facebook的私人群组，在这些群组中分发基于网络的传单。设计过程在10个月的时间里在几个讲习班上进行。我们通过跟踪参与者之间有影响力的交互的数量来描述和表征单个设计会议期间的参与。我们将有影响力的交互定义为沟通，无论是口头的还是基于网络的内容操作，都可以推进设计过程。我们展示了一个设计会议的数据，该会议持续了1小时48分钟，包括4名参与者。在会议期间，有301个有影响力的互动，包括79个口头评论和222个基于网络的内容操作。基于Web的参与式设计可以从参与者那里获得输入和决策，以开发健康信息资源，例如移动的应用程序用户界面。总体而言，与会者参与度很高。这种方法保持了传统的面对面设计会议的好处和保真度，减轻了缺陷，并利用了以前未考虑的基于网络的方法的好处，例如提高了那些远离学术机构的人的参与能力。基于网络的参与式设计方法是一种有效可行的方法论设计方法。
There is an urgent and unmet need for accessible and credible health information within the transgender and gender-diverse (TGD) community. Currently, TGD individuals often seek and must find relevant resources by vetting social media posts. A resource that provides accessible and credible health-related resources and content via a mobile phone app may have a positive impact on and support the TGD population. COVID-19 stay-at-home orders forced a shift in the methods used in participatory design. In this paper, we aimed to describe the web-based participatory methods used to develop the Transgender Health Information Resource. We also described and characterized the web-based engagement that occurred during a single session of the overall design process. We planned and conducted web-based design sessions to replace the proposed in-person sessions. We used web-based collaborative tools, including Zoom (Zoom Video Communications), Mural (Mural), REDCap (Research Electronic Data Capture; Vanderbilt University), and Justinmind (Justinmind), to engage the participants in the design process. Zoom was used as an integrated platform for design activities. Mural was used to perform exercises, such as free listing, brainstorming, and grouping. REDCap allowed us to collect survey responses. Justinmind was used to create prototypes that were shared and discussed via Zoom. Recruitment was led by one of our community partners, One Colorado, who used private Facebook groups in which web-based flyers were dispersed. The design process took place in several workshops over a period of 10 months. We described and characterized engagement during a single design session by tracking the number of influential interactions among participants. We defined an influential interaction as communication, either verbal or web-based content manipulation, that advanced the design process. We presented data from a single design session that lasted 1 hour and 48 minutes and included 4 participants. During the session, there were 301 influential interactions, consisting of 79 verbal comments and 222 web-based content manipulations. Web-based participatory design can elicit input and decisions from participants to develop a health information resource, such as a mobile app user interface. Overall, participants were highly engaged. This approach maintained the benefits and fidelity of traditional in-person design sessions, mitigated deficits, and exploited the previously unconsidered benefits of web-based methods, such as enhancing the ability to participate for those who live far from academic institutions. The web-based approach to participatory design was an efficient and feasible methodological design approach.