Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers
Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers
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DOI：
10.1191/0269216304pm837oa
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发表时间：
2004-01-01
影响因子：
4.4
通讯作者：
Benton, TF
中科院分区：
文献类型：
--
作者：
Murray, SA;Kendall, M;Benton, TF
背景：我们着手探讨危及生命的疾病患者和他们的非正式照顾者是否认为他们在总体需求的背景下经历了重大的精神需求，精神关怀可能因疾病群体和疾病过程而异，以及患者和他们的照顾者认为他们在解决精神问题方面可能会得到支持。方法：对20例不能手术的肺癌患者和20例终末期心力衰竭患者及其非正式照顾者进行为期一年的三个月的定性访谈。结果：我们进行了149次深度访谈。精神上的担忧对两组中的许多患者都很重要，无论是在疾病进展的早期还是后期。无论患者和照顾者是否有宗教信仰，他们都表达了对爱、意义、目标的需求，有时还表达了超越的需求。肺癌和心力衰竭的不同经历引发了精神问题和需求的不同模式。照顾者表达了他们自己的精神需求。患者和照顾者通常不愿提出精神问题，但许多人在与研究人员发展关系的背景下，能够谈论这种需求。结论：精神问题对许多患者在生命的最后一年和他们的照顾者来说是重要的。许多健康专业人士。缺乏必要的时间和技能来发现和解决这些问题。如果患者和照顾者愿意，为他们创造讨论精神问题的机会，需要高度发达的沟通技能和充足的时间。
Background: We set out to explore whether patients with life-threatening illnesses and their informal carers consider they experience significant spiritual needs, in the context of their overall needs, how spiritual concerns might vary by illness group and over the course of the illness, and how patients and their carers think they might be supported in addressing spiritual issues. Methods: Three-monthly qualitative interviews for up to one year with 20 patients with inoperable lung cancer and 20 patients with end-stage heart failure and their informal carers. Results: We conducted 149 in-depth interviews. Spiritual concerns were important for many patients in both groups, both early and later in the illness progression. Whether or not patients and carers held religious beliefs, they expressed needs for love, meaning, purpose and sometimes transcendence. The different experiences of lung cancer and heart failure raised contrasting patterns of spiritual issues and needs. Carers voiced their own spiritual needs. Patients and carers were generally reluctant to raise spiritual issues, but many, in the context of a developing relationship with the researcher, were able to talk about such needs. Conclusions: Spiritual issues were significant for many patients in their last year of life and their carers. Many health professionals. lack the necessary time and skills to uncover and address such issues. Creating the opportunity for patients and carers to discuss spiritual issues, if they wish, requires highly developed communication skills and adequate time.