Consumers and evaluation of interactive health communication applications

Consumers and evaluation of interactive health communication applications
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DOI:
10.1016/s0749-3797(98)00104-4
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发表时间:
1999-01-01
影响因子:
5.5
通讯作者:
Brennan, PF
Brennan, PF
中科院分区:
医学2区
文献类型:
--
作者:
Gustafson, DH;Robinson, TN;Brennan, PF

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交互式健康沟通(IHC)应用程序通过其信息、情感支持、决策支持和行为改变服务,有可能显著改善公众的生活质量,减少疾病和伤害的总负担。互联网的发展和日益成熟推动了它们的出现,它打破了地理障碍,为人们提供了从广泛多样的资源中学习的机会。但是,医疗保健系统倾向于将医疗保健从机构、专家甚至初级保健提供者手中推开,这将助长它们的增长。由于患者在医院和医疗保健提供者那里花费的时间越来越少,他们被迫承担更多的护理责任,但往往没有提供这样做的资源。此外,医学日益复杂,提高生产力的压力,以及越来越多的人认识到,治疗疾病比标准医疗模式要复杂,这促使医疗服务提供者与患者分担责任。有一种单独但不断加强的趋势是,患者和家属希望参与自己的医疗保健。老年人在人口中所占的比例越来越大,他们正在成为更加自信的参与者。婴儿潮时期出生的人通常更有主见,他们正步入40多岁和50多岁,这时慢性疾病开始出现,与医疗系统的互动也在增加。如果能得到有效的帮助,这种自信通常是好的。IHC应用可以帮助满足个人了解和更好地控制自己和家人健康的日益增长的需求。然而,ihc也给消费者带来了风险,因为他们无法从高质量的应用程序中区分出不充分和误导性的应用程序。本文的目的是探讨IHC应用程序对消费者的潜在风险和好处,并讨论可能帮助消费者在IHC应用程序中做出更明智的选择并更有效地使用他们所采用的应用程序的举措。虽然消费者是最终的受益者,但这篇文章也是为那些作为消费者倡导者的读者准备的。对于消费者,本报告阐述了诸如评估对他们重要的原因等问题,鼓励开发用相关语言为他们定制的评估模板,并提供了消费者权利和责任清单以及如何在该领域发挥这些权利和责任。对于那些对消费者福利感兴趣的人,我们在营养标签系统、研究、基于网络的调查、消费者报告服务以及通过现有或新机制进行监督等领域找到了机会。
Interactive health communication (IHC) applica-tions, through their information, emotional support, decision support and behavior change services, have the potential to dramatically improve the public’s quality of life and reduce the total burden of illness and injury. Their emergence has been fueled by the growth and increasing sophistication of the Internet, which allows geographic barriers to fall and offers people an opportunity to learn from widely diverse resources. But their growth will be fertilized by the propensity for the health care system to push health care away from institutions, specialists, and even primary care providers. As patients are spending less time in the hospital and with their health care providers, they are being forced to assume more responsibility for their care, but often not provided resources to do it. Moreover, the increasing complexity of medicine, pressures for increased productivity, and growing recognition that there is more to dealing with illness than the standard medical model, is prompting providers to share responsibility with patients. There has been a separate but reinforcing trend toward patients and families wanting to participate in their own health care. The elderly, a growing percentage of the population, are becoming more assertive participants. Baby boomers, who have generally been more assertive, are moving into their late 40s and 50s, a time when chronic health conditions start to emerge and interactions with the medical system increase. 1 This assertiveness is generally good, if support is available to help patients be effectively assertive. IHC applications can help fill this growing need for individuals to understand and take greater control of their health and that of their families. However, IHCs also pose a risk to consumers who cannot sort out inadequate and misleading applications from ones of high quality. The purpose of this article is to explore the potential risks and benefits of IHC applications to consumers, and discuss initiatives that may help consumers make more informed choices among IHC applications and make more-effective use of the applications they adopt. While the consumer is the ultimate beneficiary, the article is also intended for audiences who act as advocates for the consumer. For the consumer, this report addresses issues such as reasons why evaluation should be important to them, encourages development of an evaluation template customized for them in relevant language, and offers a list of consumer rights and responsibilities and how to exert them in this field. For those interested in consumer welfare, we identify opportunities in areas such as nutrition-labeling systems, research, Web-based surveys, consumer report services, and oversight through existing or new mechanisms.