Late effects and healthcare needs of survivors of allogeneic stem cell transplantation: a qualitative study.
Late effects and healthcare needs of survivors of allogeneic stem cell transplantation: a qualitative study.
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DOI：
10.1136/bmjspcare-2012-000277
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发表时间：
2012-12
影响因子：
2.7
通讯作者：
Suarez-Almazor M
中科院分区：
文献类型：
--
作者：
Hwang JP;Roundtree AK;Giralt SA;Suarez-Almazor M
This qualitative study of survivors of allogeneic stem cell transplantation (SCT) for hematologic malignancy explored attitudes about late effects of therapy, healthcare issues and information needs. We conducted 12 in-depth cognitive interviews and 3 focus groups of patients who had previously had SCT and were without recurrence of their primary disease. We used grounded theory methods, where themes emerged from consensus between co-coders. Health-related quality of life was assessed with the Short-Form (SF-36). The study included 22 patients (50% female; 95% white; mean age 47 years). The mean time from SCT was 5.2 years (±1.4 years). Most had low SF-36 scores. Participants discussed late effects of therapy, most commonly graft-versus-host disease, and how they impacted their quality of life. They reported frequent healthcare use and cancer screening after SCT and discussed problems affording care and interacting with insurance companies. Participants shared sources of health information (e.g., preferring providers as their primary sources of information, but also learned from websites, medical journals, and peer experiences) and identified information barriers (e.g., feeling “on their own” insofar as they did not have targeted care for their needs), and expressed importance of anticipatory guidance regarding infertility. Overall, participants’ personal issues and social influences impacted survivors’ needs and attitudes. SCT survivors face continuing and lasting health effects. The factors impacting survivorship needs are complex and may be interrelated. Future research should study the affect of incorporating personal and social issues into existing clinical SCT programs on survivors’ quality of life.
