Pain, Anger, and the Fear of Being Discovered Persist Long after the Disclosure of HIV Serostatus among Adolescents with Perinatal HIV in Rural Communities in South Africa.
Pain, Anger, and the Fear of Being Discovered Persist Long after the Disclosure of HIV Serostatus among Adolescents with Perinatal HIV in Rural Communities in South Africa.
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DOI：
10.3390/children7120261
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发表时间：
2020-11-28
期刊：
影响因子：
--
通讯作者：
Madiba S
中科院分区：
文献类型：
--
作者：
Maseko Y;Madiba S
向青少年通报其艾滋病毒血清状况是其艾滋病毒护理的一部分，是向成人临床护理服务过渡的关键一步。本文描述了患有围产期HIV的青少年在披露方面的经历，并考察了披露对他们的情绪健康和行为的影响。本研究采用质的设计，对从南非农村地区招募的21名12-19岁青少年进行访谈。使用NVivo 10计算机软件进行主题分析。所有青少年都知道自己的艾滋病毒血清状况。调查结果显示，延迟披露是一次性事件，是计划外的。泄露发生在诊所，而不是青少年的家中。对于大多数青少年来说，愤怒、痛苦、悲伤、对自我的负面看法、内在化的污名和否认在披露发生后很长一段时间内仍然存在。他们一直生活在害怕自己的血清被发现的恐惧中，并对自我表露产生了一种恐惧感。他们的负面情绪破坏了治疗的坚持性。相比之下，其他青少年称披露是一件积极的事情，接受了自己的艾滋病毒状况，生活方式与其他青少年相似。长期的负面反应突显了对农村环境中的青少年进行持续的披露后干预的重要性，在那里，心理社会支助服务不足以解决他们的情绪健康问题。
Informing adolescents of their HIV serostatus forms part of their HIV care and is a critical step in the transition to adult clinical care services. This article describes the experiences of adolescents with perinatal HIV in regard to disclosure, and examines the impact disclosure has on their emotional health and behaviors. We used a qualitative design to conduct interviews with 21 adolescents aged 12–19 years recruited from a rural district in South Africa. NVivo 10 computer software was used for thematic analyses. All adolescents were aware of their HIV-serostatus. The findings show that delayed disclosure, was a one-time event, and was unplanned. Disclosure occurred at the clinic rather than the adolescent’s home. For most adolescents, feelings of anger, pain, sadness, negative perceptions of self, internalized stigma, and denial persisted long after disclosure occurred. They lived in constant fear of having their serostatus being discovered, and they developed a sense of fear of self-disclosure. Their negative emotions undermined treatment adherence. In contrast, other adolescents that described disclosure as a positive event, had accepted their HIV status, and lived similar to other adolescents. The prolonged negative reactions underscore the importance of ongoing post-disclosure interventions for adolescents in rural settings where psychosocial support services are insufficient to address their emotional wellbeing.
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影响因子：
4.9
作者：
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