What patients want: relevant health information technology for diabetes self-management
What patients want: relevant health information technology for diabetes self-management
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DOI：
10.1007/s12553-012-0022-7
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发表时间：
2012-09-01
影响因子：
2.5
通讯作者：
Glasgow, Russell E.
中科院分区：
文献类型：
--
作者：
King, Diane K.;Toobert, Deborah J.;Glasgow, Russell E.
卫生信息技术在提高患者护理效率、增加患者与提供者的沟通以及患者参与治疗方面具有巨大潜力。本文定性探讨了2型糖尿病患者希望从电子资源，旨在支持他们的糖尿病自我管理。通过访谈和焦点小组收集数据，这些数据来自管理式护理患者，他们已经完成了基于网络（MyPath）或基于面对面小组（！万岁！）纵向糖尿病自我管理研究。内容分析确定了共同的主题，突出了参与者对虚拟和电子程序的兴趣，以支持糖尿病自我管理的目标，以及他们所需的内容和功能。十八！万岁！2010-2011年，30名“我的途径”参与者参加了7个重点小组。所有参与者都表示更喜欢面对面的接触;然而，大多数参与者也有兴趣使用技术作为工具来支持日常糖尿病自我管理决策和接收定制信息。所有参与者都希望能够选择技术，就如何使用程序功能提供个性化指导，并能够与其医疗保健团队交换信息。参与者在虚拟社会支持网络是否应该对朋友和家人关闭，是否应该包括其他计划成员（同龄人），或者是否应该向任何糖尿病患者开放的问题上存在分歧。65岁及以上的参与者强调希望得到技术支持。患者希望从技术中获得的是日常行为决策的实时帮助，与医疗团队共享信息的能力，与他人的支持和选择的联系。
Health information technology has great potential to promote efficiency in patient care and increase patient-provider communication, and patient engagement in their treatment. This paper explored qualitatively what patients with type 2 diabetes want from electronic resources that are designed to support their diabetes self-management. Data were collected via interviews and focus groups from managed care patients who had completed participation in either a web-based (MyPath) or in-person group-based (! Viva Bien!) longitudinal diabetes self-management study. Content analysis identified common themes that highlighted participant interest in virtual and electronic programs to support diabetes self-management goals, and their desired content and features. Eighteen ! Viva Bien! participants completed telephone interviews and 30 MyPath participants attended seven focus groups in 2010-2011. All participants expressed a preference for face-to-face contact; however, most participants were also interested in using technology as a tool to support daily diabetes self-management decisions and to receive tailored information. Choice of technology, personalized instruction on how to use program features, and the ability to exchange information with their healthcare team were desired by all participants. Participants were divided on whether virtual social support networks should be closed to friends and family, should include other program members (peers), or should be open to anyone with diabetes. Participants aged 65 and older stressed the desire for technical support. What patients wanted from technology is real-time assistance with daily behavioral decision-making, ability to share information with their healthcare team, connections with others for support, and choice.