Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia.

Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia.
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DOI:
10.1016/j.cct.2022.106903
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发表时间:
2022-10
影响因子:
2.2
通讯作者:
Yank V
Yank V
中科院分区:
医学4区
文献类型:
--
作者:
Santoyo-Olsson J;Lorig K;Romo EM;Luzanilla M;Ramirez GA;Cheng J;Chesla C;Covinsky KE;Karliner L;Thompson DG;Fahrenwald N;Yank V

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老年痴呆症是一个复杂的问题,由于资源和正式的支持系统较少,生活在农村地区的照顾者负担沉重。迫切需要确定有效、可扩展和可访问的在线计划,以支持农村照顾者的福祉。建立更好的照顾者(BBC),一个可能的解决方案,是一个异步的在线6周,互动和技能建设讲习班开发的照顾者痴呆症患者。本研究旨在评估英国广播公司讲习班在美国农村痴呆症护理人员中的有效性和实施情况。将与地方、州和国家合作组织合作,采用混合方法进行混合有效性和实施试验。符合条件的参与者居住在美国的农村地区,每周至少照顾患有痴呆症的家庭成员或朋友10小时,并且可以上网。评价基于RE-AIM框架。使用随机对照试验评估有效性结局。照顾者被随机分配到BBC工作室(干预)或注意力控制组。通过对伙伴组织和参与者进行调查和情况汇报访谈,对执行成果进行评估。研究方案,包括研究设计,招募和评估方法,以及结果进行了描述。这是第一个已知的研究,以评估在农村地区的现实世界条件下,照顾者支持干预的有效性和实施。如果成功的话,这个在线研讨会将是一个实用和可接受的方法,以促进地理上孤立的农村痴呆症护理人员的健康和福祉。
Dementia caregiving is complex and disproportionally burdens caregivers living in rural areas due to fewer resources and formal support systems. There is an immediate need to identify effective, scalable, and accessible online programs to support rural caregivers’ well-being. Building Better Caregivers (BBC), a possible solution, is an asynchronous online 6-week, interactive, and skills-building workshop developed for caregivers of persons with dementia. This research aims to assess the effectiveness and implementation of the BBC workshop when delivered among rural dementia caregivers in the United States. A hybrid effectiveness and implementation trial applying mixed methods will be conducted in collaboration with local, state, and national partnering organizations. Eligible participants live in a rural area of the United States, give care at least 10 h a week for a family member or friend with dementia, and have internet access. Evaluation is based on the RE-AIM framework. Effectiveness outcomes are assessed using a randomized control trial. Caregivers are randomly assigned to the BBC workshop (intervention) or attention control group. Implementation outcomes are assessed using surveys and debriefing interviews from partnering organizations and participants. The study protocol including the study design, methods of recruitment and assessment, and outcomes are described. This is the first known study to evaluate both the effectiveness and implementation of a caregiver support intervention under real-world conditions in rural areas. If successful, this online workshop will be a practical and acceptable approach for promoting the health and well-being of geographically isolated rural dementia caregivers.
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