Retention of enrollees following a cancer diagnosis within health maintenance organizations in the Cancer Research Network.
Retention of enrollees following a cancer diagnosis within health maintenance organizations in the Cancer Research Network.
复制标题
癌症研究网络健康维护组织内癌症诊断后的参与者的保留。
DOI：
10.1093/jnci/djh010
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发表时间：
2004
期刊：
影响因子：
--
通讯作者：
Reed,George
中科院分区：
文献类型：
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作者：
Field,TerryS;Cernieux,Jackie;Buist,Diana;Geiger,Ann;Lamerato,Lois;Hart,Gene;Bachman,Don;Krajenta,Rick;Greene,Sarah;Hornbrook,MarkC;Ansell,Gary;Herrinton,Lisa;Reed,George
人口实验室与完整的临床信息的护理事件需要支持的研究质量提供给癌症患者。癌症研究网络（CRN）内的数据资源可以克服现有癌症数据库的许多局限性，但其潜在的临床价值取决于入选人群的稳定性。为了评估这一问题，我们研究了132580名从1993年1月1日到1998年12月31日诊断为癌症的患者的幸存者的保留率，这些患者在参加CRN的五个健康维护组织的站点登记。从癌症诊断到死亡、退出或随访结束（即，1999年12月31日）。在癌症诊断后1年和5年，所有癌症合并的存活者的留存率分别为96.0%（95%置信区间[CI] = 95.9%至96.1%）和83.9%（95% CI = 83.4%至84.3%）。被诊断患有癌症的入组者中仍然入选并可用于评估的比例表明，CRN非常适合研究癌症患者的护理质量、生存率和长期结局。
Population laboratories with complete clinical information on episodes of care are needed to support research on the quality of care delivered to cancer patients. Data resources within the Cancer Research Network (CRN) may overcome many of the limitations of existing cancer databases, but their potential clinical value depends on the stability of the enrolled population. To assess this issue, we studied the retention rates among survivors of the 132 580 patients diagnosed with cancer from January 1, 1993, through December 31, 1998, who were enrolled at five health maintenance organization sites participating in the CRN. Enrollees were followed from cancer diagnosis through death, disenrollment, or the end of follow-up (i.e., December 31, 1999). The retention rate among survivors for all cancers combined at 1 and 5 years after cancer diagnosis was 96.0% (95% confidence interval [CI] = 95.9% to 96.1%) and 83.9% (95% CI = 83.4% to 84.3%), respectively. The proportion of enrollees diagnosed with cancer who remained enrolled and available for evaluation suggests that the CRN is well-suited for studies of the quality of care for cancer patients, survivorship, and long-term outcomes.