The next of kin of older people undergoing haemodialysis: a discursive perspective on perceptions of participation
The next of kin of older people undergoing haemodialysis: a discursive perspective on perceptions of participation
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DOI：
10.1111/j.1365-2648.2011.05854.x
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发表时间：
2012-08-01
影响因子：
3.8
通讯作者：
Heggen, Kare
中科院分区：
文献类型：
--
作者：
Aasen, Elin Margrethe;Kvangarsnes, Marit;Heggen, Kare
Aasen E.M.，kvangarsnes M.，Wold B.&Heggen K.(2011)接受血液透析的老年人的近亲：参与观念的论述视角。《高级护理杂志》68(6)，17161725。抽象的目标。这篇论文是一项研究的报告，该研究旨在探索将接受终生血液透析治疗的老年人的家庭成员如何感知参与。背景资料。自1999年以来，家庭参与治疗和保健的权利得到国际法和挪威国内法的支持。方法。这项研究采用探索性的定性方法，于2008年在挪威进行。数据来自对7名接受批评性话语分析的家庭成员的文字采访。调查结果。关于近亲参与知觉的三种话语实践：(1)关心和控制，(2)争取参与，(3)被遗忘和无能为力。这位亲属说，他们没有与医疗团队对话，一些人争取被纳入决策过程。结论。近亲表达的话语的主导部分似乎是一种家长式的意识形态。因此，寻找方法使近亲参与决策过程似乎是透析单位的医疗团队面临的主要挑战。
aasen e.m., kvangarsnes m., wold b. & heggen k. (2011) The next of kin of older people undergoing haemodialysis: a discursive perspective on perceptions of participation. Journal of Advanced Nursing68(6), 17161725. Abstract Aim. This paper is a report of a study conducted to explore how the family members of older people who will undergo haemodialysis treatment for the rest of their lives perceive participation. Background. The rights of families to participate in treatment and health care are supported by international law, and by national law in Norway since 1999. Method. This study, which employed an explorative qualitative approach, was carried out in Norway in 2008. Data were derived from transcribed interviews with seven family members underwent critical discourse analysis. Findings. Three discourse practices about the next of kin perception of participation were found: (1) to care and take control, (2) to struggle for involvement, and (3) to be forgotten and powerless. The next of kin said that they had no dialogue with the healthcare team, and some fought to be included in the decision-making process. Conclusion. The dominant part of the discourse as expressed by the next of kin seems to be a paternalistic ideology. Thus, finding ways to enable the next of kin to participate in the decision-making process seems to be a major challenge for the healthcare team in the dialysis units.