An internet survey of 2,596 people with fibromyalgia
An internet survey of 2,596 people with fibromyalgia
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DOI：
10.1186/1471-2474-8-27
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发表时间：
2007-03-09
影响因子：
2.3
通讯作者：
Matallana, Lynne
中科院分区：
文献类型：
--
作者：
Bennett, Robert M.;Jones, Jessie;Matallana, Lynne
背景资料：本研究探讨了使用互联网调查纤维肌痛（FM）患者的可行性，以期提供有关人口统计学、信息来源、症状、功能、感知加重因素、感知触发事件、医疗保健利用、管理策略和药物使用的信息。调查问卷是由国家纤维肌痛协会（NFA）与“该领域专家”工作组联合开发的。该问卷经过多轮测试，以提高其表面效度，内容效度，清晰度和可读性，然后在互联网上安装。该问卷由121个项目组成，可在全国纤维肌痛协会的网站上在线获得。大多数受访者来自美国，50个州中每个州至少有一名受访者。受访者主要是中年白人女性，其中大多数有FM症状≥ 4年。最常见的问题是晨僵、疲劳、非恢复性睡眠、疼痛、注意力集中和记忆力。加重因素包括：情绪困扰、天气变化、失眠和剧烈活动。受访者认为最有效的管理方式是休息，热，止痛药，抗抑郁药和催眠药。最常用的药物是：对乙酰氨基酚、布洛芬、萘普生、环苯扎林、阿米替林和阿司匹林。被认为是最有效的药物是：氢可酮制剂，阿普唑仑，羟考酮制剂，唑吡坦，环苯扎林，氯硝西泮。结论：这项调查提供了一个快照FM在2005年年底，报告的一个自我选择的人群。这种描述性数据具有启发性功能，因为它确定了几个问题，以供进一步研究，如FM医疗保健提供者的处方习惯，情绪沉淀剂的作用，肥胖的影响，腰痛的意义和FM相关僵硬的性质。
Background: This study explored the feasibility of using an Internet survey of people with fibromyalgia (FM), with a view to providing information on demographics, sources of information, symptoms, functionality, perceived aggravating factors, perceived triggering events, health care utilization, management strategies, and medication use.Methods: A survey questionnaire was developed by the National Fibromyalgia Association (NFA) in conjunction with a task force of "experts in the field". The questionnaire underwent several rounds of testing to improve its face validity, content validity, clarity and readability before it was mounted on the internet. The questionnaire consisted of 121 items and is available online at the website of the National Fibromyalgia Association.Results: The questionnaire was completed by 2,569 people. Most were from the United States, with at least one respondent from each of the 50 states. Respondents were predominantly middle-aged Caucasian females, most of whom had FM symptoms for >= 4 years. The most common problems were morning stiffness, fatigue, nonrestorative sleep, pain, concentration, and memory. Aggravating factors included: emotional distress, weather changes, insomnia, and strenuous activity. Respondents rated the most effective management modalities as rest, heat, pain medications, antidepressants, and hypnotics. The most commonly used medications were: acetaminophen, ibuprofen, naproxen, cyclobenzaprine, amitriptyline, and aspirin. The medications perceived to be the most effective were: hydrocodone preparations, aprazolam, oxycodone preparations, zolpidem, cyclobenzaprine, and clonazepam.Conclusion: This survey provides a snap-shot of FM at the end of 2005, as reported by a self-selected population of people. This descriptive data has a heuristic function, in that it identifies several issues for further research, such as the prescribing habits of FM health care providers, the role of emotional precipitants, the impact of obesity, the significance of low back pain and the nature of FM related stiffness.