Acceptance of epilepsy surgery among adults with epilepsy - What do patients think?
Acceptance of epilepsy surgery among adults with epilepsy - What do patients think?
复制标题
DOI：
10.1016/j.yebeh.2012.04.126
复制
发表时间：
2012-07-01
影响因子：
2.6
通讯作者：
Beghi, Ettore
中科院分区：
文献类型：
--
作者：
Erba, Giuseppe;Messina, Paolo;Beghi, Ettore
医生的惰性通常被归咎于癫痫手术（ES）的利用不足，其代价是增加患者的残疾和死亡风险。对选定的难治性TLE和少数民族患者群体的调查表明，患者的信念也可能限制ES的使用。为了评估“主流”患者对ES的接受程度，我们向228名参加癫痫诊所的成年人分发了一份特别问卷，发现广泛的恐惧和误解导致对ES的不利看法，无论诊断、癫痫发作类型和难治性程度如何。此外，虽然一组坚定地拒绝ES，大多数人变得更加有利时，给予更多的信息，方式，理由和预期的结果ES。态度变化与患者的社会概况相关。神经科医生负责提供所有相关的信息，以潜在的手术候选人尽快指示。因此，治疗医生的不及时或不充分的干预构成了ES最佳利用的额外障碍。(c)2012 Elsevier Inc. All rights reserved.
Physician inertia is usually blamed for the underutilization of epilepsy surgery (ES) at the cost of increased patient disability and risk of mortality. Investigations on selected groups of patients with intractable TLE and minorities suggested that patient beliefs may also limit access to ES. To assess acceptance of ES among "mainstream" patients, we distributed an ad hoc questionnaire to 228 adults attending epilepsy clinics and found widespread fears and misconceptions leading to unfavorable perception of ES, irrespective of diagnosis, seizure type, and degree of intractability. Moreover, while a group firmly rejected ES, the majority became more favorable when given further information about modality, rationale, and expected outcome of ES. Attitude changes correlated with patient's social profile. Neurologists are responsible for providing all pertinent information to potential surgical candidates as soon as indicated. Therefore, an untimely or inadequate intervention of the treating physician constitutes an additional barrier to optimal utilization of ES. (c) 2012 Elsevier Inc. All rights reserved.