Single-Parent Caregivers of Children with Cancer
Single-Parent Caregivers of Children with Cancer
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癌症儿童的单亲照顾者
DOI：
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发表时间：
2013
影响因子：
1.7
通讯作者：
A. Klassen
中科院分区：
文献类型：
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作者：
Z. Rosenberg;L. Granek;L. Sung;R. Klaassen;D. Dix;J. Cairney;A. Klassen
目的：照顾患有癌症的儿童会给家庭带来巨大的经济压力，进而影响父母的情感、身体和社会健康。我们探索了在照看过程中帮助患有癌症儿童的单亲父母的支持因素和资源。方法：采用建构主义扎根理论的方法，我们招募了29名确诊后至少6个月的癌症儿童的单亲父母和来自加拿大4个儿科肿瘤中心的2名医院社会工作者。结果：许多父母知道、接触并得到了家人、朋友、社区(如教师、宗教组织)、癌症组织和政府项目的支持。尽管如此，他们报告了一些未得到满足的需求。结论：参与者报告他们需要更多的社会情感、实际和经济支持，以帮助他们履行照顾职责。我们建议医院提供教育，以描述(A)家庭可获得的支持和(B)父母照顾者对家庭支持网络的需求。需要进行进一步的研究，以确定目前为照顾者提供的公共福利计划的局限性。
Objectives: Caring for a child with a cancer can result in significant financial strain on families, which in turn can affect parental emotional, physical, and social health. We explored the supportive factors and resources that helped single parents of children with cancer throughout the caregiving process. Methods: Using a constructivist grounded theory approach, we recruited 29 single parents of children with cancer that were at least 6 months postdiagnosis and 2 hospital social workers across 4 Canadian pediatric oncology centers. Results: Many parents had knowledge of, accessed, and received support from family, friends, community (eg, teachers, religious organizations) and cancer organizations and government programs. Nonetheless, they reported a number of unmet needs. Conclusions: Participants reported their need for more social-emotional, practical, and financial support to assist them with their caregiving duties. We recommend that hospitals provide education to describe (a) supports available to families and (b) parental caregiver needs to families’ support networks. Further research is needed to identify limitations of the current public benefit schemes for caregivers.