Information needs and the related variables of Japanese family caregivers of terminally ill cancer patients.
Information needs and the related variables of Japanese family caregivers of terminally ill cancer patients.
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DOI：
10.1111/j.1442-2018.2003.00170.x
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发表时间：
2004-03-01
影响因子：
2.7
通讯作者：
Fukui, Sakiko
中科院分区：
文献类型：
--
作者：
Fukui, Sakiko
本研究探讨癌症末期病患家属照顾者的资讯需求。资料来自66名日本癌症患者的照顾者在姑息治疗病房进行结构化访谈。对疾病相关信息（疾病、治疗和预后）和护理相关信息（患者和家庭成员的护理）的需求进行了调查，并评估了与个人信息需求相关的人口统计学和情境特征。超过60%的家庭护理人员希望获得疾病相关信息，其中约一半希望获得患者和家庭护理相关信息。这些信息需求与家庭照顾者的年龄和患者依赖的情境变量，如诊断后的时间，在姑息治疗单位注册之前的护理站点，以及其他家庭照顾者的存在或不存在显着相关。研究结果可能有助于医疗保健专业人员更好地告知晚期癌症患者及其家庭护理人员。
The present study examined the information needs of family caregivers of terminally ill cancer patients. Data were obtained by a structured interview from 66 Japanese caregivers of cancer patients institutionalized in a palliative care unit. Needs for disease-related information (the disease, treatment and prognosis) and care-related information (the care for the patient and family members) were investigated, and demographic and situational characteristics related to individual information needs were assessed. More than 60% of family caregivers wanted disease-related information, and approximately half of these wanted patient and family care-related information. These information needs had significant correlations with the family caregiver's age and with such patient-dependent situational variables as time since diagnosis, care site before enrolling in a palliative care unit, and presence or absence of other family caregivers. The results may help health care professionals to better inform terminally ill cancer patients and their family caregivers.