To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing
To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing
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DOI：
10.1007/s12187-011-9134-2
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发表时间：
2012-06-01
影响因子：
2.8
通讯作者：
Leonard, H.
中科院分区：
文献类型：
--
作者：
Foley, K. -R.;Blackmore, A. M.;Leonard, H.
本文的目的是从残疾儿童和青少年的角度描述福祉的含义。二十名患有脑瘫、自闭症、阿斯伯格综合症、唐氏综合症、轻度至中度智力障碍和视力障碍等一系列残疾的儿童和青少年参加了五个焦点小组和一次访谈。至少有两名经验丰富的专业人士为小组提供便利，其中包括一名记录小组内讨论并记录上下文信息的现场笔记的抄写员。开放编码最初用于数据命名和分类。然后使用不断的比较方法来比较代码和类别，以促进概念理解。幸福感含义的六个主题从描述参与、好朋友的重要性、家庭因素、与学校表现相关的焦虑、应对策略/弹性以及个人成长和发展的数据中浮现出来。从孩子的角度来看，幸福的概念被描述为感觉被支持、被包容和被尊重，以及感觉被重视和有能力。儿童和年轻人提出的想法凸显了当前儿童福祉指标中的差距。这些包括人际关系中的相互尊重、应对策略、被重视的感觉以及积极的自我意识。儿童和青少年无论是否有障碍，都可以为研究提供宝贵的投入。
The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective. Twenty children and young people with a range of disabilities including, cerebral palsy, autism, Aspergers syndrome, Down syndrome, mild to moderate intellectual disability and vision impairment, participated in five focus groups and one interview. Groups were facilitated by at least two experienced professionals, including one scribe who recorded the discussions within the groups and took field notes on contextual information. Open coding was used to initially name and categorise data. Constant comparison methods were then used to compare codes and categories to advance the conceptual understanding. Six themes of the meaning of wellbeing emerged from the data describing participation, the importance of good friends, family factors, anxiety relating to performance at school, coping strategies/resilience, and personal growth and development. The concept of wellbeing from the child's perspective was described as feeling supported, included and respected, as well as feeling valued and capable. Ideas raised by children and young people have highlighted gaps within current indicator sets of children's wellbeing. These include reciprocal respect within relationships, coping strategies, feeling valued and having a positive sense of self. Children and young people can provide valuable input into research, regardless of impairment.