Building Community-Based Participatory Research Partnerships with a Somali Refugee Community

Building Community-Based Participatory Research Partnerships with a Somali Refugee Community
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DOI:
10.1016/j.amepre.2009.09.036
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发表时间:
2009-12-01
影响因子:
5.5
通讯作者:
Shipp, Michele P-L
Shipp, Michele P-L
中科院分区:
医学2区
文献类型:
--
作者:
Johnson, Crista E.;Ali, Sagal A.;Shipp, Michele P-L

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被引文献

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背景:美国已经成为越来越多的移民和难民的家园,这些移民和难民来自女性生殖器切割(FGC)传统做法盛行的国家。目的:本研究调查了索马里移民妇女在美国医疗保健系统中的经历,探索态度、观念和文化价值观(如FGC)如何影响她们对生殖保健保健的使用。方法:2005年至2008年,与索马里难民社区开展了一项基于社区的混合方法参与性研究(CBPR),包括调查、半结构化焦点小组和个人访谈。结果:描述了与索马里社区建立伙伴关系的过程,审查了在进行CBPR过程中的挑战、成功和吸取的教训。通过动员社区社交网络、建立信任和使用视频启发装置,克服了获得知情同意、语言障碍和对FGC自我报告的依赖的挑战。社区合作伙伴关系围绕表达社区独特的医疗保健关切的共同目标进行合作,为制定干预计划提供信息,以提高文化能力。结论:使用混合方法的社区参与性研究对于促进信任建立和让社区成员作为研究过程每个阶段的积极参与者至关重要,使难民社区的研究能够严格和合乎道德地进行。(Am J Prev Med2009;37(6S1):S230-S236)
Background: The U.S. has become home to growing numbers of immigrants and refugees from countries where the traditional practice of female genital cutting (FGC) is prevalent. These women under-utilize reproductive health care, and challenge healthcare providers in providing culturally appropriate care.Purpose: This study examined Somali immigrant women's experiences with the U.S. healthcare system, exploring how attitudes, perceptions, and cultural values, such as FGC, influence their use of reproductive health care.Methods: A mixed-method community-based participatory research (CBPR) collaboration with a Somali refugee community was conducted from 2005 to 2008 incorporating surveys, semi-structured focus groups, and individual interviews. Providers caring for this community were also interviewed to gain their perspectives and experiences.Results: The process of establishing a partnership with a Somali community is described wherein the challenges, successes, and lessons learned in the process of conducting CBPR are examined. Challenges obtaining informed consent, language barriers, and reliance on FGC self-report were surmounted through mobilization of community social networks, trust-building, and the use of a video-elicitation device. The community partnership collaborated around shared goals of voicing unique healthcare concerns of the community to inform the development of interventional programs to improve culturally-competent care.Conclusions: Community-based participatory research using mixed-methods is critical to facilitating trust-building and engaging community members as active participants in every phase of the research process, enabling the rigorous and ethical conduct of research with refugee communities. (Am J Prev Med 2009;37(6S1) :S230-S236) (C) 2009 American Journal of Preventive Medicine