The many "costs" of transportation: Examining what cancer caregivers experience as transportation obstacles.

The many "costs" of transportation: Examining what cancer caregivers experience as transportation obstacles.
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交通的诸多“成本”:检查癌症护理人员所经历的交通障碍。

DOI:
10.1002/cam4.6351
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发表时间:
2023-08
期刊:
影响因子:
4
通讯作者:
--
中科院分区:
医学3区
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--
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交通已被确定为癌症护理人员的具体负担来源。本研究调查了癌症护理人员在为家人或朋友提供临终关怀的 6 个月期间内与交通相关的主观体验和目标成本。这是一项多中心纵向、前瞻性队列研究,对 223 名护理者与患者进行了跟踪研究。通过每两周一次的半结构化访谈收集数据,持续时间长达 6 个月,并收集所有护理相关收据。使用比较、迭代分析对访谈进行编码和分析,并使用描述性统计描述实际自付费用。在 6 个月的研究期间,大多数看护者(n = 143;74%)在一个或多个时间点讨论了交通。护理人员每两周的平均交通费用为 43.6 美元。护理人员描述了 (n = 56;39%) 多种直接和间接交通成本,58% (n = 84) 讨论了机构层面对交通服务或援助的需求。护理人员描述了他们经历的多方面交通成本,这与之前的工作一致。除了直接成本的描述外,护理人员还描述了关键的机会成本,例如运送患者所浪费的个人和工作时间。护理人员还提出了基于机构和/或公民的解决方案的建议,以促进可靠的交通方式,而不是个人层面的干预。
Transportation has been identified as a specific source of burden for cancer caregivers. This study examined cancer caregivers' subjective experiences and objectives costs associated with transportation over a 6‐month period of providing end‐of‐life care to a family member or friend. This was a multi‐site longitudinal, prospective cohort study that followed 223 caregiver–patient dyads. Data were collected using biweekly, semi‐structured interviews for up to 6 months and collection of all caregiving related receipts. Interviews were coded and analyzed using a comparative, iterative analysis and actual out of pockets costs were described using descriptive statistics. Over the 6‐month study period most caregivers (n = 143; 74%) discussed transportation at one or more timepoints. Average biweekly transportations costs to caregivers were $43.6. Caregivers described (n = 56; 39%) multiple direct and indirect costs of transportation, and 58% (n = 84) discussed the need for transportations services or assistance at the institutional level. Caregivers described the multifaceted costs of transportation they experienced which are in line with previous work. Alongside descriptions of direct costs, caregivers described key opportunity costs, such as personal and work time forgone to transporting patients. Caregivers also made suggestions for institutional and/or civic based solutions to facilitate reliable modes of transportation, rather than individual‐level intervention.
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