Disparities in lupus care and outcomes.
Disparities in lupus care and outcomes.
复制标题
狼疮护理和结果的差异。
DOI：
10.1097/bor.0b013e328323daad
复制
发表时间：
2009-03
影响因子：
5.1
通讯作者：
Costenbader KH
中科院分区：
文献类型：
--
作者：
Demas KL;Costenbader KH
系统性红斑狼疮（SLE）是一种以自身抗体产生和多种临床表现为特征的炎症性风湿病，易受弱势群体的影响：妇女、少数民族、贫困人群以及缺乏医疗保险和教育的人群。我们总结了目前对SLE中观察到的差异的认识，并强调了最近的研究，旨在剖析这些差异的原因，并确定导致这些差异的潜在可改变因素。一些可补救的原因，包括缺乏教育、自我效能和获得高质量、有经验的医疗保健，已被发现导致观察到的SLE患病率和结果的差异。SLE在发病率、严重程度和结局方面存在着惊人的差异。几个研究小组正在研究这些差异的原因。确定潜在的可纠正的致病因素应该允许制定有效的策略，以改善所有SLE患者的医疗服务和结果。
Systemic lupus erythematosus (SLE), an inflammatory rheumatic disease characterized by autoantibody production and diverse clinical manifestations, disproportionately affects vulnerable groups: women, racial and ethnic minorities, the poor, and those lacking medical insurance and education. We summarize the current knowledge of the disparities observed in SLE and highlight recent research that aims to dissect the causes of these disparities and to identify the potentially modifiable factors contributing to them. Several remediable causes, including lack of education, self-efficacy, and access to quality, experienced healthcare, have been found to contribute to observed disparities in SLE prevalence and outcomes. SLE is associated with alarming disparities in incidence, severity and outcomes. The causes of these disparities are under study by several research groups. Identifying potentially correctable contributory factors should allow for the development of effective strategies to improve the healthcare delivery and outcomes in all SLE patients.