Addressing Challenges in Recruiting Diverse Populations for Research: Practical Experience From a P20 Center.
Addressing Challenges in Recruiting Diverse Populations for Research: Practical Experience From a P20 Center.
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DOI：
10.1097/nnr.0000000000000577
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发表时间：
2022-05-01
期刊：
影响因子：
2.5
通讯作者：
Dickson, Victoria Vaughan
中科院分区：
文献类型：
--
作者：
Wright, Fay;Malone, Susan Kohl;Wong, Agnes;D'Eramo Melkus, Gail;Dickson, Victoria Vaughan
改善所有研究领域代表性不足群体的招募和保留对卫生公平至关重要。然而，实现和保留不同的样本是具有挑战性的。招募和留住不同参与者的障碍包括社会经济和文化因素以及实际挑战（例如，时间和旅行承诺）。本文的目的是描述在美国国家护理研究所资助的P20中心进行的两项相关研究中使用的成功招募和保留策略，该中心专注于多种慢性疾病（MCC）人群的精确健康研究，包括代谢综合征（MetS）。为了解决met和MCC的复杂性、生物多样性和影响，我们在P20中心制定了适合文化的、多管齐下的招聘和保留策略，用于试点干预研究和纵向观察试点研究。以下是指导招聘和保留策略的基本原则：(a)灵活性；(b)积极倾听和双向对话；(c)创新解决问题。干预研究（试点1）纳入了49名参与者。纵向观察研究（试点2）招募了45名参与者。妇女和少数种族/族裔在这两方面都有大量代表。在试验1中，大多数参与者完成了干预和所有阶段的数据收集。在试点2中，大多数参与者完成了数据收集的所有阶段，并选择提供生物库标本。我们根据一般医疗人群的标准策略制定了招聘和保留计划。我们的现实世界经验为这些策略的调整提供了依据，以促进经常不参与研究的个人的参与，特别是妇女和种族/民族人群。我们在两项试点研究中的经验表明，从一开始，招募不同人群应该在研究计划中建立灵活性。
Improving the recruitment and retention of underrepresented groups in all research areas is essential for health equity. However, achieving and retaining diverse samples is challenging. Barriers to recruitment and retention of diverse participants include socioeconomic and cultural factors and practical challenges (e.g., time and travel commitments). The purpose of this paper is to describe the successful recruitment and retention strategies used by two related studies within a National Institute of Nursing Research-funded P20 center focused on precision health research in diverse populations with multiple chronic conditions (MCC), including metabolic syndrome (MetS). To address the complexity, biodiversity, and effect of MetS and MCC, we developed culturally appropriate, multipronged recruitment and retention strategies for a pilot intervention study and a longitudinal observational pilot study within our P20 center. The following are the underlying principles that guided the recruitment and retention strategies: (a) flexibility, (b) active listening and bidirectional conversations, and (c) innovative problem-solving. The intervention study (Pilot 1) enrolled 49 participants. The longitudinal observational study (Pilot 2) enrolled 45 participants. Women and racial/ethnic minorities were significantly represented in both. In Pilot 1, the majority of the participants completed the intervention and all phases of data collection. In Pilot 2, the majority of participants completed all phases of data collection and chose to provide biorepository specimens. We developed a recruitment and retention plan building on standard strategies for a general medical population. Our real-world experiences informed the adaption of these strategies to facilitate the participation of individuals who often do not participate in research—specifically, women and racial/ethnic populations. Our experience across two pilot studies suggests that recruiting diverse populations should build flexibility in the research plan at the outset.