A Pilot Study Determining Comprehension and the Acceptability of a Cancer Research Study Website for Cancer Patients and Caregivers
A Pilot Study Determining Comprehension and the Acceptability of a Cancer Research Study Website for Cancer Patients and Caregivers
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DOI：
10.1007/s13187-019-01501-w
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发表时间：
2020-06-01
影响因子：
1.6
通讯作者：
Krieger, Janice L.
中科院分区：
文献类型：
--
作者：
Flood-Grady, Elizabeth;Neil, Jordan M.;Krieger, Janice L.
这项试点研究的目的是确定癌症研究网站是否增加了患者和护理人员的理解，以及患者和护理人员群体之间的网站评估是否有所不同。参与者 (N = 200) 是居住在美国的癌症患者和护理人员。理解程度取决于对一系列有关癌症研究关键特征的问题的正确回答数量，这些问题经常被患者和/或护理人员未知或误解。进行定量和定性分析以确定参与者在四个领域的评估：感知网站可信度、感知网站吸引力、感知信息有效性和感知信息清晰度。患者和护理人员认为该网站高度可信且有吸引力，其信息易于理解且在帮助他们做出有关 CCT 的决策方面效果较好。定性反馈强调了推荐对网站可信度的重要性。然而，参与者对某些项目的正确反应数量的范围，加上患者和护理人员之间的理解差异，表明需要更强有力的机制来评估知识成果。
The purpose of this pilot study was to determine if a cancer research study website increased comprehension among patients and caregivers and if website evaluations differed across patient and caregiver groups. Participants (N = 200) were cancer patients and caregivers living in the USA. Comprehension was determined by the number of correct responses to a series of questions about key characteristics of cancer research studies that are frequently unknown or misinterpreted by patients and/or caregivers. Quantitative and qualitative analyses were conducted to determine participant evaluations across four domains: perceived website credibility, perceived website attractiveness, perceived information effectiveness, and perceived information clarity. Patients and caregivers perceived the website as highly credible and attractive and the information as both easy to understand and moderately effective in helping them make decisions about CCTs. Qualitative feedback underscores the importance of testimonials to website credibility. However, the range in the number of correct responses of certain items across participants coupled with discrepancies in comprehension between patients and caregivers suggests the need for stronger mechanisms evaluating knowledge outcomes.