Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer.
Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer.
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开发一种新工具来评估癌症对儿童癌症年轻幸存者的影响。
DOI：
10.1007/s11764-009-0087-0
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发表时间：
2009
期刊：
影响因子：
--
通讯作者：
Zebrack,Brad
中科院分区：
文献类型：
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作者：
Zebrack,Brad
背景30年的心理社会肿瘤学研究详细的问题有显着的影响，在儿童和成人人群，然而，很少有研究已经捕捉到微妙的和独特的方式，癌症的影响，破坏，并在某些情况下，促进生长和发育的青少年和年轻的成年人与癌症史。本文报道了通过开发一种新的癌症影响（IOC）工具来评估癌症对这一年轻幸存者群体的影响的努力。方法64名年龄在18-39岁并接受儿科恶性肿瘤治疗的年轻人参加了面对面的访谈，并回答了促使他们描述癌症对他们的身体，心理，社会和精神/生存福祉。分析的目的是将数据组织成有意义的子类别，从中开发一组候选调查项目，评估长期幸存者归因于其癌症experience.ResultsA的一系列问题，问题和变化，共有82个候选调查项目代表11个主题领域的内容，包括身体，健康和身体形象，治疗和保健，生孩子，身份，谈论和思考癌症，癌症的意义，记忆和思维，财务，家庭和关系，社交，和生活Goals.ConclusionAssessing该工具的心理测量特性在一个大的代表性群体的年轻癌症幸存者是下一步进一步发展这样的措施。一旦建立，一个有效和可靠的癌症工具的影响有可能在临床环境中识别突出的生存问题。
BackgroundThirty years of psychosocial oncology research have detailed issues having significant impact in both pediatric and adult populations; yet, few studies have captured the subtle and unique ways in which cancer impacts, disrupts and in some instances promotes the growth and development of adolescents and young adults with a cancer history. This paper reports the initiation of an effort to assess the impact of cancer in this young survivor population through the development of a new Impact of Cancer (IOC) instrument.Methods64 young adults aged 18–39 years and treated for a pediatric malignancy participated in face-to-face interviews and responded to questions prompting them to describe the impact of cancer on their physical, psychological, social and spiritual/existential well-being. Intent of analysis was to organize data into meaningful sub-categories from which to develop a set of candidate survey items that assess a range of problems, issues and changes that long-term survivors ascribe to their cancer experience.ResultsA total of 82 candidate survey items represented content across 11 topical domains including Body, Health and Body image, Treatment and Health Care, Having Children, Identity, Talking and Thinking About Cancer, Meaning of Cancer, Memory and Thinking, Finances, Family and Relationships, Socializing, and Life Goals.ConclusionAssessing the instrument’s psychometric properties in a large representative group of young cancer survivors is the next step for further development of such a measure. Once established, a valid and reliable Impact of Cancer instrument has the potential for identifying salient survivorship issues in a clinical setting.