Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study
Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study
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DOI：
10.1186/s12877-016-0305-3
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发表时间：
2016-07-07
期刊：
影响因子：
4.1
通讯作者：
Chalmers, K. J.
中科院分区：
文献类型：
--
作者：
Bond, K. S.;Jorm, A. F.;Chalmers, K. J.
背景：帮助痴呆症患者可能会导致严重的护理负担，并可能给患者带来负面后果。本研究采用德尔菲法，就家庭和非专业护理人员应如何帮助患有认知障碍或患有痴呆或谵妄的人制定了专家共识指南。方法：对网站、书籍和期刊文章进行系统搜索，以制定一份调查问卷，其中包含帮助正在发生认知障碍或患有痴呆或谵妄的人所需的知识、技能和行动的项目。这些项目由两个由专门从事痴呆症研究或治疗的专业人员以及痴呆症护理倡导者组成的国际专家小组进行了三轮评级。结果：共有 65 名参与者（专业小组 43 名，护理倡导者小组 22 名）完成了所有三轮调查。在 656 个已评级的调查项目中，共有 389 个项目得到了每个小组至少 80% 的支持。这些认可的项目构成了指导文件的基础，该文件解释了家庭和非专业护理人员在帮助患有认知障碍或患有痴呆或谵妄的人时需要了解和做什么。结论：两组专家能够就如何帮助患有认知障碍或患有痴呆或谵妄的人达成实质性共识。
Background: Assisting a person with dementia can lead to significant carer burden and possible negative outcomes for the person. Using the Delphi method, this study developed expert consensus guidelines for how family and non-professional carers should assist a person who is developing cognitive impairment, or has dementia or delirium.Methods: A systematic search of websites, books and journal articles was conducted to develop a questionnaire containing items about the knowledge, skills and actions needed for assisting a person who is developing cognitive impairment, or has dementia or delirium. These items were rated over three rounds by two international expert panels comprising professionals specialising in research or treatment of dementia, and dementia carer advocates.Results: A total of 65 participants (43 in the professional panel and 22 in the carer advocate panel) completed all three survey rounds. Of the 656 survey items that were rated, a total of 389 items were endorsed by at least 80 % of each panel. The endorsed items formed the basis of a guidelines document that explains what family and non-professional carers need to know and do when assisting a person who is developing cognitive impairment, or has dementia or delirium.Conclusions: The two groups of experts were able to reach substantial consensus on how to assist a person who is developing cognitive impairment, or has dementia or delirium.