"Yummy or crummy?' The multisensory components of medicines-taking among HIV-positive youth

"Yummy or crummy?' The multisensory components of medicines-taking among HIV-positive youth
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DOI:
10.1080/17441692.2018.1504103
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发表时间:
2019-01-01
影响因子:
3.3
通讯作者:
Ashorn, Mikael
Ashorn, Mikael
中科院分区:
医学3区
文献类型:
--
作者:
Hodes, Rebecca;Vale, Beth;Ashorn, Mikael

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抗逆转录病毒治疗(ART)的全球推广表明,迫切需要了解艾滋病毒阳性青少年的服药做法。在过去的十年中,关于健康的社会决定因素的文献扩大了ART依从性的证据基础。跨学科研究已经扩大了药物服用的概念,超越了临床或卫生系统框架,认识到社会结构条件和患者的信仰和经验的重要性。前瞻性的研究技术,前景的青少年的观点提供了更大的见解仍然到他们的坚持。本文探讨了参与性方法的使用在更广泛的研究艾滋病毒阳性的青少年在南非的ART坚持的社会决定因素。我们描述了参与性方法是如何被纳入这项研究的(在定量基线中n=1,059)。我们专注于一个练习,好吃还是不好吃?“,探索了药物服用的多感官维度,包括它们的颜色,气味,形状和输送机制。我们描述了两个主要的调查结果:第一,青少年的偏好,更好地了解药物的化学工作,表现在他们的喜好颜色,味道和形状的药物;第二,感官偏好和社会需要的谨慎和保密艾滋病毒状况之间的重要关系。
The global rollout of Antiretroviral Treatment (ART) has revealed an urgent need to understand the medicines-taking practices of HIV-positive adolescents. In the last decade, the literature on the social determinants of health has broadened the evidence-base on ART adherence. Interdisciplinary studies have expanded conceptions of medicines-taking beyond clinical or health systems frameworks, recognising the importance of socio-structural conditions and of patients' beliefs and experiences. Participatory research techniques which foreground the perspectives of adolescents provide greater insights still into their adherence. This article explores the use of participatory methods within a broader study on the social determinants of ART adherence among HIV-positive adolescents in South Africa. We describe how participatory methods were incorporated into this study (n=1,059 in the quantitative baseline). We focus on an exercise, Yummy or crummy?', that explored the multisensory dimensions of medicines-taking, including their colour, smell, shape, and delivery mechanism. We describe two principal findings: first, adolescents' preference for greater understanding of the chemical workings of medicines, manifested in their preferences for colour, taste and shape of medicines; and second, the vital relationship between sensory preferences and the social imperatives of discretion and confidentiality regarding HIV-status.