Living with untreated localized prostate cancer - A qualitative analysis of patient narratives
Living with untreated localized prostate cancer - A qualitative analysis of patient narratives
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DOI：
10.1097/00002820-200302000-00008
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发表时间：
2003-02-01
期刊：
影响因子：
2.6
通讯作者：
Widmark, A
中科院分区：
文献类型：
--
作者：
Hedestig, O;Sandman, PO;Widmark, A
很少（如果有的话）进行旨在了解前列腺癌患者经历的定性研究。本研究的目的是阐明作为一个未经治疗的局限性前列腺癌患者的意义。七名未经治疗的局限性前列腺癌患者在家中接受了采访。访谈录了音，并转录成文字。文本分析采用了现象学-诠释学的方法，灵感来自利科的哲学。患有未经治疗的局限性前列腺癌的意义可以解释为生活在黑暗的阴影下。这种疾病被描述为对病人生命的威胁。当生活在这种阴影下时，许多被研究的男性都有一种矛盾的愿望，既想与他人分享他们的经历，又想独自面对他们的疾病经历。他们认为这种疾病改变了他们的生活，他们的男子气概受到性功能障碍的限制，并被描述为一种负担。他们使用各种应对策略来管理这种情况。尽管与医生的关系良好，但由于预后良好，这些患者可能无法得到所需的关注。
Few, if any, qualitative studies aimed at gaining an understanding of the experience of patients with prostate cancer have been done. The purpose of this study was to illuminate the meaning of being a patient living with untreated localized prostate cancer. Seven men with untreated localized prostate cancer were interviewed in their homes. The interviews were tape recorded and transcribed into text. The text was analyzed using a phenomenologic-hermeneutic approach inspired by Ricoeur's philosophy. The meaning of living with untreated localized prostate cancer could be interpreted as living life under a dark shadow. The disease was described as a threat to the patient's life. When living under this Shadow, many of the men studied had an ambivalent wish both to share their experience with others and to be alone with their experiences of the disease. They believed that the disease had changed their lives, and their manhood was restricted by sexual dysfunctions and described as a burden. They used various coping strategies to manage this situation. Despite a positive relationship with their physicians, there is a risk that these patients will not be given the attention they need because of their good prognosis.