Strategies for Successful Recruitment and Retention of Parents in Pediatric Psychosocial eHealth Interventions: A Qualitative Study in Pediatric Oncology
Strategies for Successful Recruitment and Retention of Parents in Pediatric Psychosocial eHealth Interventions: A Qualitative Study in Pediatric Oncology
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DOI：
10.1093/jpepsy/jsaa013
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发表时间：
2020-06-01
影响因子：
3.6
通讯作者：
Kazak, Anne E.
中科院分区：
文献类型：
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作者：
Canter, Kimberly S.;Vega, Gabriela;Kazak, Anne E.
目的社会心理干预研究与父母往往有困难，参与者招募，保留和参与。在进行电子生存癌症能力干预计划（eSCCIP），为癌症儿童的父母进行心理社会电子健康干预的试点测试之前，设计了一项定性研究，以先发制人地产生解决这些领域潜在困难的策略。方法采用两个焦点小组和三个半结构式访谈法对癌症患儿的家长进行访谈。定性资料采用主题分析和内容分析的原则进行分析。生成主题来描述结果，并为未来干预试验中使用的具体招募、保留和参与策略的制定提供信息。结果五个主题出现具体的招聘，三个主题出现有关保留和参与。家长们强调了一些重要的潜在招募、保留和参与策略，包括灵活性、易于获取和使用、干预时机以及后续护理途径的重要性。主题与可操作的招聘，保留和参与策略，可用于未来的研究。结论：本研究的结果将用于设计未来的eSCCIP干预试验，也将用于更广泛的儿童心理学社会心理电子健康干预研究领域。本研究还强调了在研究设计和实施的所有阶段与母公司利益相关者合作的重要性。
Objective Psychosocial intervention studies with parents often have difficulty with regard to participant recruitment, retention, and engagement. Prior to conducting a pilot test of the Electronic Surviving Cancer Competently Intervention Program (eSCCIP), a psychosocial eHealth intervention for parents of children with cancer, a qualitative study was designed to preemptively generate strategies to address potential difficulties in these domains. Methods Two focus groups and three semi-structured interviews were conducted with parents of children with cancer. Qualitative data were analyzed using the principles of thematic and content analysis. Themes were generated to describe results and inform the development of concrete recruitment, retention, and engagement strategies to be utilized in future intervention trials. Results Five themes emerged specific to recruitment, and three themes emerged related to retention and engagement. Parents highlighted a number of important potential recruitment, retention, and engagement strategies, including the importance of flexibility, ease of access and use, intervention timing, and pathways to follow-up care. Themes were linked to actionable recruitment, retention, and engagement strategies which can be utilized in future studies. Conclusion Results from the current study will be utilized when designing future eSCCIP intervention trials and will also be of use to the broader field of psychosocial eHealth intervention research in pediatric psychology. This study also underscores the importance of working with parent stakeholders at all phases of study design and implementation.