Making stillbirths count, making numbers talk - issues in data collection for stillbirths.

Making stillbirths count, making numbers talk - issues in data collection for stillbirths.
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DOI:
10.1186/1471-2393-9-58
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发表时间:
2009-12-17
影响因子:
3.1
通讯作者:
Shankar A
Shankar A
中科院分区:
医学3区
文献类型:
--
作者:
Frøen JF;Gordijn SJ;Abdel-Aleem H;Bergsjø P;Betran A;Duke CW;Fauveau V;Flenady V;Hinderaker SG;Hofmeyr GJ;Jokhio AH;Lawn J;Lumbiganon P;Merialdi M;Pattinson R;Shankar A

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死产需要计算在内。它们占世界围产期死亡的大多数,然而,它们基本上是无形的。简单地计算死产只是分析和预防的第一步。从公共卫生的角度来看,有必要了解死亡的时间和情况、相关状况和根本原因以及护理的提供和质量。这些信息将指导预防死产和提高护理质量的努力。在本报告中,我们评估了登记中的不同定义和限制如何影响数据采集,并讨论了死产登记的具体挑战,重点是实施。我们确定需要捕获哪些数据,我们建议一个数据集,以涵盖登记和分析不同类别死产的原因和质量指标的核心需求,我们说明了不同文化背景下死产登记的经验。最后,我们指出了国际疾病分类中需要注意的差距,并审查了在中低收入环境中测试过的替代系统的质量。要获得高质量的数据,就需要对死产作出一致的定义,进行系统的基于人口的登记,改进调查和口头尸检的工具,进行能力建设和死亡原因查明程序方面的培训,采用适合当地情况的质量指标,改进分类系统,以及有效的登记和报告系统。
Stillbirths need to count. They constitute the majority of the world's perinatal deaths and yet, they are largely invisible. Simply counting stillbirths is only the first step in analysis and prevention. From a public health perspective, there is a need for information on timing and circumstances of death, associated conditions and underlying causes, and availability and quality of care. This information will guide efforts to prevent stillbirths and improve quality of care. In this report, we assess how different definitions and limits in registration affect data capture, and we discuss the specific challenges of stillbirth registration, with emphasis on implementation. We identify what data need to be captured, we suggest a dataset to cover core needs in registration and analysis of the different categories of stillbirths with causes and quality indicators, and we illustrate the experience in stillbirth registration from different cultural settings. Finally, we point out gaps that need attention in the International Classification of Diseases and review the qualities of alternative systems that have been tested in low- and middle-income settings. Obtaining high-quality data will require consistent definitions for stillbirths, systematic population-based registration, better tools for surveys and verbal autopsies, capacity building and training in procedures to identify causes of death, locally adapted quality indicators, improved classification systems, and effective registration and reporting systems.
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