Epilepsy in Pakistan: Stigma and psychosocial problems. A population-based epidemiologic study

Epilepsy in Pakistan: Stigma and psychosocial problems. A population-based epidemiologic study
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DOI:
10.1111/j.1528-1157.1997.tb01195.x
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发表时间:
1997-10-01
期刊:
影响因子:
5.6
通讯作者:
Hasan, KZ
Hasan, KZ
中科院分区:
医学1区
文献类型:
--
作者:
Aziz, H;Akhtar, SW;Hasan, KZ

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目的:评估巴基斯坦癫痫患者的污名化和心理社会问题。一项基于人群的横断面流行病学研究,从24,130名高危人群中确定了241名癫痫患者(64.7%来自城市,35.3%来自农村地区)。在这些患者中,77%患有复发性非发热性全身性惊厥。评估污名化程度(即,朋友、邻居和其他人的回避),以及癫痫对其他心理社会方面的影响(例如,婚姻),以及性别和患者的教育水平之间的关系,和stigmatization.Results:在巴基斯坦癫痫患者似乎没有高度的污名化,但他们的教育和成绩受到影响的障碍。他们难以进行日常生活活动,很难决定是否要很多孩子。妇女认为她们对他人更危险,从家庭得到的帮助更少,而且比男子更经常地鼓励他人避开她们。女性也比男性更有可能表达癫痫患者不应该结婚的信念,但事实上,女性比男性更频繁地结婚,这一事实受到社会和文化压力的影响,包括来自家庭的压力,因为父母几乎总是有责任安排女儿的婚姻。受教育程度的影响表明,与受教育程度较低的癫痫患者相比,受教育程度较高的癫痫患者子女较少,不太经常被同学和邻居避开,教育计划问题较少,不太经常鼓励他人避开他们,更经常结婚,并且认为他们对他人更危险。大多数人认为,他们的条件有一个物理基础,只有3.1%归因于他们的癫痫超自然causes.Conclusions:污名化癫痫尚未被证明是一个重要的特点,在文化的巴基斯坦,因为没有任何的观察是统计上显着的P值。
Purpose: To assess the stigmatization and psychosocial problems of persons with epilepsy in Pakistan.Methods.-A population-based, cross-sectional epidemiologic study of 241 persons with epilepsy identified from an at-risk population of 24,130 individuals (64.7% from urban and 35.3% from rural areas). Of these patients, 77% suffered from recurrent non-febrile generalized convulsions. Pie evaluated degree of stigmatizations (i.e., avoidance by friends, neighbors, and others), and the effect of epilepsy on other psychosocial aspects (e.g., marriage), and also the relationships between gender and level of education of the patients, and stigmatization.Results: Patients with epilepsy in Pakistan do not appear to be highly stigmatized, but their education and grades are affected by the disorder. They have difficulty performing activities of daily living and find it hard to make decisions about whether to many or to have children. Women believed that they were more dangerous to others, received less help from their families, and, more frequently than men, encouraged others to avoid them. Women were also more likely than men to express the belief that people with epilepsy should not marry, but in fact, women more frequently married as compared men-a fact influenced by social and cultural pressures, including pressure from family, because it is nearly always the responsibility of the parents to arrange the marriage of a daughter. Influence of education indicates that people with epilepsy who have higher education, as compared with those with less education, had fewer children, were less often avoided by their classmates and neighbors, had fewer problems with plans for education, less frequently encouraged others to avoid them, were more frequently married, and believed that they were more dangerous to others. Most people believed that their conditions had a physical basis; only 3.1% attributed their epilepsy to supernatural causes.Conclusions: Stigmatization regarding epilepsy has not been proven to be an important feature in the culture of Pakistan because none of the observations are statistically significant as per P-value.