Information-seeking behaviours and decision-making process of parents of children with cancer
Information-seeking behaviours and decision-making process of parents of children with cancer
复制标题
DOI：
10.1016/j.ejon.2012.03.001
复制
发表时间：
2013-04-01
影响因子：
2.8
通讯作者：
Akgun-Citak, Ebru
中科院分区：
文献类型：
--
作者：
Kilicarslan-Toruner, Ebru;Akgun-Citak, Ebru
目的：本研究旨在通过半结构化访谈探讨癌症儿童父母的信息寻求行为、感知和决策体验。方法和样本：采用定性研究设计，评估土耳其癌症儿童父母的信息寻求行为、感知和决策过程。采用半结构化访谈计划，对15名癌症儿童的父母进行了访谈。访谈被逐字记录和记录。结果：出现了六个主要问题。问题涉及父母的信息需求、信息来源、父母在寻求信息时遇到的困难、决策过程、影响决策的因素以及卫生团队的期望。为家长提供的信息资源包括医生和护士、互联网、朋友和其他住院儿童的父母。父母主要寻求关于他们孩子的疾病、预后、治疗、副作用和护理问题的信息。家长表示，在他们的决策过程中，他们主要是由卫生保健人员指导。结论：卫生保健专业人员必须在整个疾病过程中提供足够和系统的关于疾病、治疗、预后和儿童护理的信息。此外，个人指导和业余时间是帮助父母为患有癌症的孩子做出决定的关键组成部分。(C)2012爱思唯尔有限公司。保留所有权利。
Purpose: This study aimed to explore the information-seeking behaviours, perceptions and decision-making experiences of parents of children with cancer by employing semi-structured interviews.Methods and sample: A qualitative research design was used to assess the information-seeking behaviours, perceptions and decision-making processes used by parents in Turkey whose children have cancer. Interviews were conducted with 15 parents of children with cancer using a semi-structured interview schedule. The interviews were recorded and transcribed verbatim.Results: Six main issues emerged. Issues were related to parents' information needs, the sources of information, difficulties that the parents encountered when seeking information, the decision-making process, the factors affecting decision-making, and expectations from the health team. Information resources for parents included medical doctors and nurses, the internet, friends and the parents of other children who were staying in the hospital. The parents mostly sought information about their child's illness, prognoses, treatment, side-effects and care giving issues. The parents expressed that they were directed primarily by health care providers during their decision-making process.Conclusions: Adequate and systematic information pertaining to illness, treatment, prognosis and child care must be provided by health care professionals throughout the illness process. In addition, individual guidance and spare time are key components to helping parents make decisions about their children with cancer. (C) 2012 Elsevier Ltd. All rights reserved.