Good death inventory: A measure for evaluating good death from the bereaved family member's perspective
Good death inventory: A measure for evaluating good death from the bereaved family member's perspective
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DOI：
10.1016/j.jpainsymman.2007.07.009
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发表时间：
2008-05-01
影响因子：
4.7
通讯作者：
Uchitomi, Yosuke
中科院分区：
文献类型：
--
作者：
Miyashita, Mitsunori;Morita, Tatsuya;Uchitomi, Yosuke
本研究旨在发展一套从丧亲家属角度来评估“善终”的量表，并检验其信度与效度。一个横断面的匿名问卷调查管理的癌症患者谁死在一个区域癌症中心从2004年9月至2006年2月的丧亲家属。我们测量了良好的死亡清单（GDI），护理评估量表，和整体护理满意度量表。在发送问卷一个月后进行了重新测试。在发给死者家属的344份问卷中，分析了189份答复（57%）。通过对调查问卷的因素分析，确定了10个核心领域：“环境舒适度”、“生命完整度”、“在最喜欢的地方死去”、“保持希望和快乐”、“独立性”、“身心舒适度”、“与医务人员的良好关系”、“不成为他人的负担”、“与家人的良好关系”和“作为个人受到尊重”。此外，还确定了八个可选领域：“宗教和精神安慰”、“接受足够的治疗”、“对未来的控制”、“感觉自己的生命值得活下去”、“对死亡的无知”、“骄傲和美丽”、“自然死亡”和“为死亡做准备”。GDI与护理评估量表和整体护理满意度有足够的并行效度，足够的内部一致性（α =0.74-0.95）和可接受的重测信度（ICC=0.38-0.72）。最后，我们开发了一个简短的GDI版本。GDI是一个有效的规模，以衡量结束生命，照顾全面的成果，从失去亲人的家庭成员的角度在日本。
The aim of this study was to develop a measure for evaluating good death from the bereaved family members perspective, and to examine the validity and reliability of the assessment. A cross-sectional anonymous questionnaire was administered to bereaved family members of cancer patients who had died in a regional cancer center from September 2004 to February 2006. We measured the Good Death Inventory (GDI), Care Evaluation Scale, and an overall care satisfaction scale. A retest was conducted one month after sending the questionnaire. Of the 344 questionnaires sent to bereaved family members, 189 responses were analyzed (57%). A factor analysis of the responses to the GDI identified 10 core domains: "environmental comfort," "life completion," "dying in a favorite place," "maintaining hope and pleasure," "independence," "physical and psychological comfort," "good relationship with medical staff," "not being a burden to others," "good relationship with family," and "being respected as an individual." Eight optional domains also were identified: "religious and spiritual comfort," "receiving enough treatment," "control over the future," "feeling that one's life is worth living," "unawareness of death," "pride and beauty," "natural death," and "preparation for death." The GDI had sufficient concurrent validity with the Care Evaluation Scale and overall care satisfaction, sufficient internal consistency (alpha=0.74-0.95), and acceptable test-retest reliability (ICC=0.38-0.72). Finally, we developed a short version of the GDI. The GDI is a valid scale to measure end-of-life, care comprehensive outcomes from the bereaved family member's perspective in Japan.