Perceptions of Support Groups Among Older Breast Cancer Survivors: "I've Heard of Them, but I've Never Felt the Need to Go".

Perceptions of Support Groups Among Older Breast Cancer Survivors: "I've Heard of Them, but I've Never Felt the Need to Go".
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DOI:
10.1097/ncc.0000000000000522
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发表时间:
2018
期刊:
影响因子:
2.6
通讯作者:
Pieters HC
Pieters HC
中科院分区:
医学2区
文献类型:
--
作者:
Green EK;Wodajo A;Yang Y;Sleven M;Pieters HC

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被引文献

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从积极治疗过渡到治疗后的癌症幸存者可能缺乏有关其治疗后护理的关键支持和信息。支持团体有潜力解决这一差距。描述65岁及以上的乳腺癌幸存者如何感知专业领导的面对面支持团体。个人访谈54名妇女进行了分析,采用扎根理论的建构主义。描述了关于癌症支持团体的强烈负面假设。紧张局势存在于两个对立的类别:参与者的先入为主的支持团体和他们的成员的特点,和妇女的看法,自己的信息和情感需求。与会者还介绍了他们利用哪些支助来源来代替专业领导的支助团体。尽管认识和可用性,大多数参与者没有使用支持团体作为他们的主要或癌症后治疗的资源。结构变化可以使现有的支助团体模式受益,包括如何以及何时与幸存者讨论支助需求和服务,以及转向纳入实用信息。
Cancer survivors transitioning from active treatment to posttreatment may lack critical support and information about their posttreatment care. Support groups have the potential to address this gap. To describe how breast cancer survivors 65 years and above perceived professionally-led, in-person support groups. Individual interviews with 54 women were analyzed using grounded theory informed by constructivism. Strong negative assumptions about cancer support groups were described. Tension existed between two opposing categories: participants’ preconceptions of support groups and characterizations of their members, and the women’s perceptions of their own informational and emotional needs. Participants also described what sources of support they utilized in lieu of professionally-led support groups. Despite awareness and availability, the majority of participants did not use support groups as a resource during their primary or post-cancer treatment. Structural changes can benefit existing models of support groups including how and when support needs and services are discussed with survivors and a shift toward the inclusion of practical information.