The Japanese version of skindex-16: A brief quality-of life measure for patients with skin diseases

The Japanese version of skindex-16: A brief quality-of life measure for patients with skin diseases
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DOI:
10.1111/j.1346-8138.2002.tb00205.x
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发表时间:
2002-11-01
影响因子:
3.1
通讯作者:
Chren, MM
Chren, MM
中科院分区:
医学4区
文献类型:
--
作者:
Higaki, Y;Kawamoto, K;Chren, MM

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有必要制定适用于皮肤病患者的实用生活质量衡量标准。最近开发的皮肤病生活质量的措施必须翻译和适应使用的文化,而不是在其中创建的。在这项研究中,我们翻译和适应日本文化的皮肤病特异性,简短的生活质量的措施,Skindex-16,并研究其信度和效度。对Skindex-16进行了正向和反向翻译。六个可疑项目以及“皮肤状况”一词需要进行第二次正反翻译,以便与原始文书达成令人满意的一致。然后进行跨文化适应性研究和横断面问卷调查,以评估该工具的信度和效度。100名患者和30名健康成年人对日本版本做出了回应。最终日本版Skindex-16的内部一致性可靠性较高(每个量表、症状、情绪和功能的Cronbach α范围为0.83-0.92)。日文版具有结构效度和内容效度。正如假设的那样,皮肤病患者的得分高于健康人(平均整体评分36 +/-23vs1 +/-2,p < 0.001)和炎症性疾病患者的评分高于孤立性皮肤病变患者(平均总体评分48 +/- 21 vs 22 +/- 17,p < 0.001),表明生活质量较差。大多数患者对有关其皮肤病的开放式问题的回答与美国应答者相似,并根据项目进行了处理。总之,我们已经开发了一个语义等价的翻译Skindex-16到日语。这是一个可靠和有效的措施,皮肤病的影响,生活质量的日本患者。
A practical quality-of-life measure applicable to patients with skin diseases is necessary. Recently developed dermatological quality-of-life measures must be translated and adapted for use in cultures other than the ones in which they were created. In this study, we translated and adapted culturally into Japanese a skin-disease-specific, brief quality-of-life measure, Skindex-16, and studied its reliability and validity. Forward-and back-translations of Skindex-16 were carried out. Six doubtful items as well as the term "skin condition" required a second forward- and back-translation to reach satisfactory agreement with the original instrument. Cross-cultural adaptation and cross-sectional questionnaire studies were then performed to evaluate the reliability and validity of the instrument. One hundred patients and 30 healthy adults responded to the Japanese version. The internal-consistency reliability of the final Japanese version of Skindex-16 was high (range of Cronbach's alpha for each scale, symptoms, emotions, and functioning, was 0.83-0.92). The Japanese version showed construct and content validity. As hypothesized, scores for dermatological patients were higher than those for healthy persons (mean global scores 36 +/- 23 vs 1 +/- 2, p < 0.001) and scores for patients with inflammatory diseases were higher than those for patients with isolated skin lesions (mean global scores 48 +/- 21 vs 22 +/- 17, p < 0.001), indicating a poorer quality of life. Most patients' responses to an open-ended question about their skin disease were similar to those of the American responders and were addressed according to the items. In conclusion, we have developed a semantically equivalent translation of Skindex-16 into Japanese. It is a reliable and valid measure of the effects of skin disease on the quality of life in Japanese patients.