Using Palliative Care in Progressive Neuromuscular Disease to Maximize Quality of Life
Using Palliative Care in Progressive Neuromuscular Disease to Maximize Quality of Life
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DOI：
10.1016/j.pmr.2012.08.002
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发表时间：
2012-11-01
影响因子：
1.7
通讯作者：
VandeKeift, Gregg K.
中科院分区：
文献类型：
--
作者：
Carter, Gregory T.;Joyce, Nanette C.;VandeKeift, Gregg K.
本文讨论了姑息治疗在进行性神经肌肉疾病（NDM）患者治疗途径中的作用，包括肌萎缩侧索硬化症和杜氏肌营养不良症（DMD）。患有严重NMD（如DMD）的人现在活得更长，直到成年。这使得他们适合姑息治疗的医学模式。然而，姑息治疗是一个新的领域，特别是对DMD的“成年人”。确定最有效的方式，以减轻痛苦的NMD患者接受姑息治疗服务和创建最佳实践标准的疼痛和症状管理，为这一患者群体的战略进行了讨论。
This article discusses the role of palliative care in the treatment pathway of patients with progressive neuromuscular disease (NDM), including amyotrophic lateral sclerosis and Duchenne muscular dystrophy (DMD). People with severe NMDs like DMD are now living much longer, well in to adulthood. This makes them suitable for the medical model of palliative care. Yet palliative medicine is a new area, especially for "adults" with DMD. Strategies for identifying the most effective modalities to alleviate suffering in patients with an NMD receiving palliative services and creating best practice standards in pain and symptom management for this patient population are discussed.