Silent Endurance and Profound Loneliness: Socioemotional Suffering in African Americans Living With HIV in the Rural South
Silent Endurance and Profound Loneliness: Socioemotional Suffering in African Americans Living With HIV in the Rural South
复制标题
DOI：
10.1177/1049732310387935
复制
发表时间：
2011-04-01
影响因子：
3.2
通讯作者：
Corbie-Smith, Giselle
中科院分区：
文献类型：
--
作者：
Miles, Margaret Shandor;Isler, Malika Roman;Corbie-Smith, Giselle
我们探讨了社区对艾滋病毒的反应如何导致美国南部农村非洲裔美国人感染艾滋病毒的痛苦。我们通过焦点小组倾听社区成员的声音，通过采访倾听感染艾滋病毒的非裔美国人的声音。社区对艾滋病毒的回避、对艾滋病毒的消极看法和歧视行为极大地影响了艾滋病毒感染者（PLWH）的痛苦。持续的痛苦，加上有限的支持，导致许多PLWH在沉默中忍受痛苦，经历着深刻的孤独。我们把他们的经历定义为社会情感上的痛苦——隐藏的情感负担和内心的痛苦，不仅是艾滋病毒这种复杂的严重疾病，还有社会对这种疾病和艾滋病毒携带者施加的态度和行为。为了改善PLWH的生活和健康质量，我们不能只关注个人，也必须关注当地社区和整个社会。
We explored how community responses to HIV contribute to distress in African Americans living with HIV in the rural South of the United States. We listened to the voices of community members through focus groups and African Americans with HIV through interviews. Community avoidance of HIV, negative views of HIV, and discriminatory behavior powerfully affected the distress of people living with HIV (PLWH). Ongoing distress, coupled with limited support, led to a life in which many PLWH endured their pain in silence and experienced profound loneliness. We conceptualized their experiences as socioemotional suffering-the hidden emotional burden and inner distress of not only living with HIV, a complex serious illness, but also with the societal attitudes and behaviors that are imposed on the illness and on PLWH. To improve the quality of life and health of PLWH, we cannot focus solely on the individual, but must also focus on the local community and society as a whole.