Behavioral and psycho-social impairments among people living with dementia and their management by caregivers in South-Western Uganda: a qualitative study.

Behavioral and psycho-social impairments among people living with dementia and their management by caregivers in South-Western Uganda: a qualitative study.
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DOI:
10.1080/13607863.2022.2146053
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发表时间:
2023-09
影响因子:
3.4
通讯作者:
Obua, Celestino
Obua, Celestino
中科院分区:
医学2区
文献类型:
--
作者:
Arinaitwe, Innocent;Karungi, Christine K.;Gopez, Abigail;Wakida, Edith K.;Talib, Zohray M.;Mubangizi, Vincent;Obua, Celestino

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本研究旨在探讨乌干达西南部农村痴呆症(PLWD)患者的行为和社会障碍。它还探讨了照顾者对痴呆症患者的负担。这是一项针对痴呆症患者及其护理人员的定性研究。我们连续招募了30名痴呆症患者,他们的护理人员来自他们的家中。我们使用半结构化访谈指南进行了深入访谈。我们做了主题内容分析。被低估的行为障碍的主题是:个人护理困难,身体活动不足,判断力受损。在社交和认知障碍的主题下,他们无法参加教堂、社区团体和市场等社交聚会。在护理人员的角色下,他们的负担包括管理PLWD的行为、社交和认知障碍。尽管护理人员致力于照顾艾滋病毒携带者,但这需要牺牲时间,而牺牲创收活动。痴呆症阻碍了受影响的人的行为和社会方面。照顾者照顾PLWD的负担很重。建议在照顾痴呆症患者的同时尽量减少照顾者负担的策略。
This study aimed to explore the behavioral and social impairments among people living with dementia (PLWD) in rural southwestern Uganda. It also explored the burden of Caregivers for people living with dementia. This was a qualitative study among people living with dementia and their Caregivers. We consecutively enrolled 30 people living with dementia with their Caregivers from their homes. We conducted in-depth interviews using a semi-structured interview guide. We did a thematic content analysis. The themes under-reported behavioral impairment were; difficulty in personal care, physical inactivity, and impaired judgment. Under the social and cognitive impairment theme, there was the failure to be in social gatherings like church, community groups, and markets. Under the Caregivers’ role, their burden included managing behavioral, social, and cognitive impairments of PLWD. Although Caregivers were committed to caring for PLWDs, this required sacrificing time at the expense of income-generating activities. Dementia hinders the behavioral and social aspects of the affected people. Caregivers are highly burdened to care for PLWD. Strategies to minimize Caregivers’ burden while caring for people living with dementia are recommended.
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