Working together in placing the long term interests of the child at the heart of the DSD evaluation
Working together in placing the long term interests of the child at the heart of the DSD evaluation
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DOI：
10.1016/j.jpurol.2012.07.011
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发表时间：
2012-12-01
影响因子：
2
通讯作者：
Magritte, Ellie
中科院分区：
文献类型：
--
作者：
Magritte, Ellie
本文阐述了一些重要但经常被忽视的问题，这些问题是家庭在诊断患有DSD的儿童期间和之后遇到的。它叙述了自己的生育经历，说明在诊断和性别分配期间和之后迫切需要更多的心理和教育支持。最后，文章描述了一些抚养生殖器差异儿童的实用策略。它敦促每个参与DSD儿童护理的人支持父母超越最初的焦虑和担忧，并始终将儿童的长期健康置于临床决策和护理的核心。(C)2012年由爱思唯尔有限公司代表《儿科泌尿外科杂志》出版。
This paper articulates a number of important but often ignored questions that families have during and following the diagnosis of a child with a DSD. Recounting a personal birth experience, it illustrates the urgent need for more psychological and educational support during and following diagnosis and gender assignment. Finally, the paper describes some practical strategies for raising a child living with genital difference. It urges everyone involved in the care of children with a DSD to support parents in looking beyond initial anxiety and worry and always to place the child's long term wellbeing at the very heart of the clinical decision-making and care. (C) 2012 Published by Elsevier Ltd on behalf of Journal of Pediatric Urology Company.