Time costs of caring for children with severe disabilities compared with caring for children without disabilities
Time costs of caring for children with severe disabilities compared with caring for children without disabilities
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DOI：
10.1017/s0012162201000962
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发表时间：
2001-08-01
影响因子：
3.8
通讯作者：
Knapp, M
中科院分区：
文献类型：
--
作者：
Curran, AL;Sharples, PM;Knapp, M
为了评估照顾社区严重残疾儿童的时间成本与照顾非残疾儿童的时间成本，进行了一项基于日记和问卷的研究。从有残疾儿童的家庭(平均年龄8.7岁)获得16个完整数据集，从有正常发育儿童的家庭(平均年龄4.9岁)获得31个完整数据集。研究组的诊断包括脑性瘫痪、自闭症、Sanfillipo综合征、无脑畸形和成骨不全。残疾儿童每小时清醒时的个人护理项目显著多于非残疾儿童(p
To assess time costs of caring for children with severe disabilities in the community compared to caring for children without disabilities, a diary- and questionnaire-based study was carried out. Sixteen complete data sets were obtained from families with children who have disabilities (mean age 8.7 years) and 31 complete data sets from families with normally developing children (mean age 4.9 years). Diagnoses in the study group included cerebral palsy, autism, Sanfillipo syndrome, lissencephaly, and osteogenesis imperfecta. Items of personal care per waking hour were significantly greater in children with disabilities than non-disabled children (p