Talk of frustration in the narratives of people with chronic pain
Talk of frustration in the narratives of people with chronic pain
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DOI：
10.1177/1742395312443692
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发表时间：
2012-09-01
期刊：
影响因子：
1.3
通讯作者：
Ziebland, Sue
中科院分区：
文献类型：
--
作者：
Dow, Clare M.;Roche, Patricia A.;Ziebland, Sue
目的：为了提高人们对慢性疼痛的挫折感的来源的理解，并考虑挫折感对慢性疼痛的经验和与健康professionals.Methods的关系的潜在影响：定性深入访谈与一个多样化的，最大的变化样本46名慢性疼痛，其中30人谈到挫折。结果：挫折是一种多方面的情绪，其影响具有累积性。挫折感的来源包括日常活动的干扰，生活目标和角色的中断以及疼痛的不可预测性;在这里，我们重点关注与慢性疼痛的不可见性以及诊断和疼痛管理的感知限制（两者都与感知的合法性有关）相关的挫折感。几个与慢性疼痛一起生活多年的参与者描述了克服或管理他们的挫折感。讨论：如果患者认为他们的疼痛不被相信，这显然是有效咨询的障碍。与慢性疼痛患者的沟通可能会有所改善，如果健康专业人员明确（也许是反复）承认生活在一种难以诊断和治疗的无形的、使人衰弱的疾病中的挫折感。
Objectives: To improve understanding of the sources of frustration for people with chronic pain and consider the potential influence of frustration on the chronic pain experience and relationships with health professionals.Methods: Qualitative in-depth interviews with a diverse, maximum variation sample of 46 participants with chronic pain, 30 of whom talked about frustration. Analysis paid close attention to how people talked about their frustration as well as what they said.Results: Frustration is a multi-faceted emotion and its effects are cumulative. Sources of frustration include interference with everyday activities, the interruption of life goals and roles and the unpredictability of pain; here we focus on the frustrations associated with the invisibility of chronic pain and the perceived limitations of diagnosis and pain management (both related to the perceived legitimacy of the condition). Several of the participants who had lived with chronic pain for many years described overcoming, or managing, their frustrations.Discussion: If patients think that their pain is not being believed this is clearly a barrier to an effective consultation. Communication with chronic pain patients may improve if the frustration of living with an invisible, debilitating condition that is hard to diagnose and treat is explicitly (and perhaps repeatedly) acknowledged by the health professional.