Validity and reliability of the guidelines of the Surveillance of Cerebral Palsy in Europe for the classification of cerebral palsy
Validity and reliability of the guidelines of the Surveillance of Cerebral Palsy in Europe for the classification of cerebral palsy
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DOI：
10.1111/j.1469-8749.2008.03141.x
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发表时间：
2008-11-01
影响因子：
3.8
通讯作者：
Cans, Christine
中科院分区：
文献类型：
--
作者：
Gainsborough, Mary;Surman, Geraldine;Cans, Christine
欧洲脑性瘫痪监测（SCPE）的分类脑瘫（CP）的指南的有效性和可靠性进行了测试，通过管理10个书面的情况下，通过一个交互式的基于Web的链接到30个SCPE的合作伙伴的小插曲。在SCPE数据库中，作为CP病例纳入的一致性水平中等（kappa=0.59）。CP亚型的分类在两个主要方面不同：分配痉挛与运动障碍和判断痉挛参与的分布。粗大运动功能分类系统（GMFCS）水平的一致性不如以往研究报告的好。20名受访者在5个月后重复测试，病例纳入的重复性良好（j=0.72），但CP亚型和GMFCS水平的分配有相当大的差异。有必要进一步开展合作工作和培训，以改善CP分类的协调，包括检查、SCPE指南的应用和注册编码。
The validity and reliability of the guidelines of the Surveillance of Cerebral Palsy in Europe (SCPE) for the classification of cerebral palsy (CP) were tested by administering 10 written case vignettes via an interactive web-based link to 30 SCPE partners. There was a moderately good level of agreement (kappa=0.59) about inclusion as a CP case on the SCPE database. Classification by CP subtype differed in two main areas: assigning spastic versus dyskinetic and judgement of distribution of spastic involvement. Agreement on Gross Motor Function Classification System (GMFCS) level was less good than reported in previous studies. Twenty respondents repeated the test 5 months later and there was good repeatability for case inclusion (j=0.72) but considerable variation in assignment of CP subtype and GMFCS level. There is a need for further collaborative work and training to improve harmonization of the classification of CP, including examination, application of SCPE guidelines, and register coding.