Native Hawaiian Women and the Experience of Breast Cancer

Native Hawaiian Women and the Experience of Breast Cancer
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夏威夷原住民妇女与乳腺癌的经历

DOI:
10.1300/j013v44n04_03
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发表时间:
2007
期刊:
影响因子:
1.6
通讯作者:
P. Eide
P. Eide
中科院分区:
医学4区
文献类型:
--
作者:
P. Eide

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摘要本文描述了一个定性调查夏威夷土著妇女的经历,通过和超越乳腺癌的诊断。与夏威夷的其他族裔群体相比,夏威夷土著妇女的乳腺癌发病率和死亡率都有所增加。针对夏威夷原住民的健康促进计划往往因文化不适当而失败。缺乏对文化的了解往往是这种失败的一部分。因此,本研究的具体目的是研究一组选定的夏威夷土著乳腺癌幸存者的生活经历,揭示他们的叙述和他们的个人和文化环境之间的联系,并产生有关夏威夷土著妇女的乳腺癌经验的知识,这将有助于规划未来的健康促进外展工作。该研究包括从11名夏威夷土著女性参与者中收集的访谈数据,年龄从44岁到82岁不等。对数据的解释现象学分析确定了反复出现的背景和主题。他们故事的三个主要背景是发现,转变(身体,情感和精神)和生活重组。主题包括精神联系的重要性,在类似情况下伸出援手帮助他人的利他主义愿望,以及家庭对癌症史保持沉默的背景。这些要素可以帮助制定针对这一人群的健康促进和干预活动。与这些主题交织在一起的是夏威夷土著的pono概念--一种正确和平衡的感觉,以及参与者夏威夷土著身份和文化遗产的至关重要性。
ABSTRACT This article describes a qualitative inquiry into the experiences of Native Hawaiian women living through and beyond a diagnosis of breast cancer. Native Hawaiian women have increased incidence and mortality breast cancer rates compared with other ethnic groups in Hawaii. Health promotion programs targeted at Native Hawaiians have often failed because of cultural inappropriateness. A lack of knowledge about the culture is frequently a part of this failure. Therefore, the specific purpose of this study was to examine the lived experience of a selected group of Native Hawaiian breast cancer survivors, uncover the connections between their narratives and their personal and cultural milieux, and generate knowledge about the Native Hawaiian woman's breast cancer experience that would be useful in planning future health promotion outreach efforts. The study consisted of interview data collected from 11 Native Hawaiian female participants, ranging from 44 to 82 years of age. An interpretive phenomenological analysis of the data identified recurrent contexts and themes. The three major contexts in their stories were discovery, transformation (physical, emotional and spiritual), and life realignment. Themes included the importance of spiritual connection, an altruistic desire to reach out and assist others in a similar situation, and a context of familial silence about cancer history. These elements can assist in formulating health promotion and intervention activities for this population. Interwoven with these themes was the Native Hawaiian concept of pono–a sense of rightness and balance, and the crucial importance of the participants' Native Hawaiian identity and cultural heritage.
DOI: 10.1001/archinte.163.1.49
发表时间: 2003-01-13
影响因子: --
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通讯作者: Daling, JR
DOI: --
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