Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer.
Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer.
复制标题
非小细胞肺癌的家庭护理人员负担，技能准备和生活质量。
DOI：
10.1188/13.onf.337-346
复制
发表时间：
2013-07
影响因子：
1.9
通讯作者：
Ferrell B
中科院分区：
文献类型：
--
作者：
Grant M;Sun V;Fujinami R;Sidhu R;Otis-Green S;Juarez G;Klein L;Ferrell B
描述NSCLC患者护理者的负担、技能准备和QOL，并描述研究结果如何为制定旨在减轻护理者负担、提高护理技能和促进自我护理的护理者姑息治疗干预提供信息。描述性的纵向的位于南加州的一家NCI指定的综合性癌症中心。共有163名18岁或以上的家庭成员或朋友被患者确定为照顾者。所有符合条件的照顾者都在定期安排的患者门诊访视期间由高级执业护士（APN）接触。在参与研究前获得知情同意书。在基线时完成结局测量，并在第7、12、18和24周重复测量。计算所有变量的描述性统计量，并使用单因素重复测量方差分析（ANOVA）来检验所有预测变量和结局变量随时间的变化。照顾者负担、技能准备、心理困扰和生活质量。护理人员的功能很强。与主观需求相关的照顾者负担随着时间的推移显着增加。感知技能准备在基线时很高，但随着时间的推移而下降。心理困扰是中度的，但随着时间的推移而增加。基线时总体QOL为中度，并随时间推移显著下降。心理健康的QOL得分最低。照顾者经历了高水平的照顾者的负担，并报告恶化的心理健康和整体生活质量随着时间的推移。肿瘤科护士需要确保护理人员在整个癌症轨迹中获得支持其角色的信息。
Describe burden, skills preparedness, and QOL for caregivers of patients with NSCLC, and describe how findings informed the development of a caregiver palliative care intervention that aims to reduce caregiver burden, improve caregiving skills, and promote self-care. Descriptive, longitudinal. One NCI-designated comprehensive cancer center in Southern California. A total of 163 family members or friends who were 18 years or older and identified by patients as being the caregiver were accrued. All eligible caregivers were approached by advance practice nurses (APNs) during a regularly scheduled patient clinic visit. Informed consent was obtained prior to study participation. Outcome measures were completed at baseline and repeated at 7, 12, 18, and 24 weeks. Descriptive statistics were computed for all variables, and one-way repeated measures Analysis of Variance (ANOVA) was used to test for change over time for all predictor and outcome variables. Caregiver burden, skills preparedness, psychological distress, and QOL. Caregivers were highly functional. Caregiver burden related to subjective demands increased significantly over time. Perceived skills preparedness was high at baseline, but decreased over time. Psychological distress was moderate but increased over time. Overall QOL was moderate at baseline, and decreased significantly over time. Psychological well-being had the worst QOL score. Caregivers experienced high levels of caregiver burden, and report deteriorations in psychological well-being and overall QOL over time. Oncology nurses need to ensure that caregivers receive information that supports the caregiving role throughout the cancer trajectory.