Qualitative exploration of Japanese rural citizens' consideration of terminal home care through an educational forum.
Qualitative exploration of Japanese rural citizens' consideration of terminal home care through an educational forum.
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DOI：
10.1002/jgf2.206
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发表时间：
2018-11
影响因子：
1.6
通讯作者：
Katsube T
中科院分区：
文献类型：
--
作者：
Ohta R;Ryu Y;Katsube T
在许多国家，对老年人的家庭护理服务的需求正在逐渐增加。过去，日本老年人通常在家中死亡，但目前的趋势是在医院死亡。然而，日本很少有研究探讨人们对家庭护理的看法，特别是在农村地区。因此，我们澄清了日本农村居民对家庭临终关怀的看法。我们对152名目前或潜在的老年人照顾者进行了定性研究，他们住在岛根县昂南市，那里有大量的老年人口。利用一个由专题介绍和讲习班组成的教育论坛向农村公民提供有关家庭临终关怀的信息。对讲习班的内容进行了专题分析，内容涉及与会者认为的与临终家庭护理有关的困难。与会者描述了关于临终家庭护理问题的四个主题：医疗方面、护理负担、卫生保健系统和患者问题。除了需要更多地了解医疗卫生系统外，参与者还担心护理对他们生活的负担以及他们所在社区的其他人的看法。这项研究是关于日本农村居民对临终关怀的看法的第一份报告。研究结果表明，日本农村地区家庭护理的有限使用可能与缺乏对终末家庭护理和医疗保健系统的了解、照顾者的巨大护理负担以及患者和家庭之间的冲突有关。
The need for home care services for older adults is gradually increasing in many countries. In the past, Japanese older adults typically died at home, but the current trend is toward hospital death. Few studies in Japan have explored peoples’ viewpoint on home care, however, especially in rural areas. Therefore, we clarified Japanese rural residents’ views of terminal home care. We conducted a qualitative study of 152 participants who are current or potential caregivers of older adults and who live in the city of Unnan, Shimane Prefecture, which has a large elderly population. An educational forum consisting of presentations and a workshop were used to provide information on terminal home care to rural citizens. A thematic analysis of the workshop's content regarding participants’ perceived difficulties related to terminal home care was conducted. Participants described four themes regarding problems of terminal home care: medical aspects, care burden, health care system, and patient problems. Besides the need for more knowledge of the medical and health system, participants were anxious about the burden of care on their lives and the perceptions of others in their community. This study is the first report on Japanese rural citizens’ views of terminal home care. The findings suggest that the limited use of home care in Japanese rural areas might relate to a lack of understanding of terminal home care and health care systems, a substantial care burden for caregivers, and conflicts between patients and families.