Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.

Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.
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DOI:
10.1093/geroni/igad034
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发表时间:
2023
影响因子:
7
通讯作者:
Gaugler, Joseph E.
Gaugler, Joseph E.
中科院分区:
医学2区
文献类型:
--
作者:
Mitchell, Lauren L.;Horn, Brenna;Stabler, Henry;Birkeland, Robyn W.;Peterson, Colleen M.;Albers, Elle A.;Gaugler, Joseph E.

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2019冠状病毒病(COVID-19)大流行为居住在长期护理设施(LTC)的痴呆症患者的护理人员带来了前所未有的威胁和干扰。定性和横断面研究报告了大流行对痴呆症照顾者福祉的重大负面影响,但很少或没有前瞻性研究使用大流行前评估来研究COVID-19对照顾者福祉的影响。本研究使用的纵向数据来自一项正在进行的随机对照试验的心理社会干预,以支持家庭照顾者的亲属已进入LTC。数据收集从2016年开始,一直持续到2021年。照顾者(N = 132)完成了7项评估,测量他们的抑郁症状,自我效能和负担。潜在增长曲线模型测试预先登记的假设显示,大流行对照顾者的结果平均没有显着影响,虽然照顾者在个人截距和斜率方面有所不同。此外,诸如照顾者与照顾者关系的密切程度、照顾者的COVID-19感染状况以及照顾者对LTC设施的COVID-19政策的评级等因素并没有显著缓和幸福的轨迹。研究结果强调了大流行期间照顾者经历的异质性,并建议在解释COVID-19大流行对照顾者福祉和痛苦影响的横截面研究结果时应谨慎。
The coronavirus disease 2019 (COVID-19) pandemic introduced unprecedented threats and disruptions for caregivers of people with dementia living in residential long-term care (LTC) facilities. Qualitative and cross-sectional studies have reported substantial negative effects of the pandemic on dementia caregivers’ well-being, but little to no prospective research has examined the impact of COVID-19 on caregiver well-being using pre-pandemic assessments. The present study used longitudinal data from an ongoing randomized controlled trial of a psychosocial intervention to support family caregivers whose relatives had entered LTC. Data collection began in 2016 and continued through 2021. Caregivers (N = 132) completed up to 7 assessments measuring their depressive symptoms, self-efficacy, and burden. Latent growth curve models testing preregistered hypotheses revealed no significant effects of the pandemic on caregiver outcomes on average, though caregivers varied in terms of individual intercepts and slopes. Furthermore, factors such as caregiver–care recipient relationship closeness, care recipient’s COVID-19 infection status, and caregivers’ ratings of LTC facilities’ COVID-19 policies did not significantly moderate trajectories of well-being. Findings highlight the heterogeneity of caregivers’ experiences during the pandemic, and suggest caution when interpreting cross-sectional findings on the impacts of the COVID-19 pandemic on caregiver well-being and distress.
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发表时间: 1999-01-01
影响因子: 6
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