Exploring Quality of Life Experiences and Concerns of Black Breast Cancer Survivors: a Narrative Approach.
Exploring Quality of Life Experiences and Concerns of Black Breast Cancer Survivors: a Narrative Approach.
复制标题
探索黑人乳腺癌幸存者的生活质量经历和担忧：一种叙事方法。
DOI：
10.1007/s13187-023-02381-x
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发表时间：
2024
期刊：
影响因子：
--
通讯作者：
Schmitz,KathrynH
中科院分区：
文献类型：
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作者：
Burse,NatashaRenee;Cuffee,YendelelaL;Wray,LindaA;Chinchilli,VernonM;Lengerich,EugeneJ;Schmitz,KathrynH
与白色乳腺癌幸存者相比，黑人乳腺癌幸存者（BCS）更有可能经历次优生活质量（QoL）。生活质量是一个多维度的概念，侧重于幸福的不同方面（例如，情感幸福）。关于QoL的观点和经验的证据有限（例如，乳腺癌对生活质量的影响）和生活质量问题（例如，对身体外观的负面看法）。本研究的目的是探讨黑人BCS的生活质量经验和生活质量的关注。主要数据收集在半结构化访谈和分析使用主题分析。采用叙述方法（一小群人的详细故事或生活经历），以便目标群体更好地理解研究主题。Ferrell关于乳腺癌生活质量的概念框架用于指导访谈问题、代码和主题的开发。有10名黑人BCS，平均年龄58岁。两个编码器实现了中等水平的一致性（即，Kappa值为0.77。确定了五个主要主题：定义QoL（QoL对他们意味着什么），行为变化（例如，由于癌症而改变行为），癌症的阶段（例如，乳腺癌诊断）、生活质量经验和影响生活质量的因素，以及癌症幸存者的影响陈述（参与者分享的其他有意义的信息）。幸存者报告了多个生活质量问题和身体形象问题。研究结果保证癌症教育干预或计划，以解决黑人BCS的相关生存问题。
Black breast cancer survivors (BCS) in comparison with White BCS are more likely to experience suboptimal quality of life (QoL). QoL is a multi-dimensional concept that focuses on different aspects of well-being (e.g., emotional well-being). There is limited evidence on the perspectives and experiences of QoL (e.g., the influence of breast cancer on QoL) and the QoL concerns (e.g., negative perceptions of body appearance) among Black BCS. The purpose of this study was to explore the QoL experiences and QoL concerns of Black BCS. Primary data was collected in semi-structured interviews and analyzed using a thematic analysis. A narrative approach (detailed stories or life experiences of a small group of people) was used to better understand the research topic among the target group. Ferrell’s Conceptual Framework on QoL in Breast Cancer was used to guide the development of the interview questions, codes, and themes. There were 10 Black BCS, averaging 58 years of age. Two coders achieved a moderate level of agreement (i.e., Kappa) of 0.77. Five major themes were identified: defining QoL (what QoL means to them), behavioral changes (e.g., altering behaviors due to cancer), phases of cancer (e.g., breast cancer diagnosis), QoL experiences and factors affecting QoL, and impactful statements from cancer survivors (other meaningful information shared by the participants). The survivors reported multiple QoL concerns and body image issues. The study findings warrant cancer education interventions or programs to address the relevant survivorship issues of Black BCS.