Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study.
Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study.
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DOI：
10.1111/hex.12684
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发表时间：
2018-10
期刊：
影响因子：
--
通讯作者：
Jones J
中科院分区：
文献类型：
--
作者：
Mathie E;Wythe H;Munday D;Millac P;Rhodes G;Roberts N;Smeeton N;Poland F;Jones J
研究人员与患者和公众参与（PPI）贡献者之间的互惠关系可以使PPI在研究中取得成功。然而，研究和轶事证据表明，研究人员通常不会向PPI贡献者提供反馈，从而使他们无法知道他们的贡献是否、如何或在哪里对研究人员和整体研究有用。本研究的目的是探讨英国六个PPI小组中研究人员对PPI贡献者反馈的变化、类型、重要性和满意度，并确定反馈过程中的障碍。一项解释性混合方法序列研究设计，采用问卷调查，随后对六个PPI组的研究人员和PPI贡献者进行半结构化访谈。PPI贡献者参与了研究过程的所有阶段。研究人员通常不会向PPI贡献者提供反馈。反馈被发现有不同的含义：承认，影响和学习的成功和进步。收到反馈的PPI贡献者有动力进一步参与；它支持他们的学习和发展，并促使研究人员反思PPI的影响。还强调了生产者计划负责人或协调员在促进提供反馈过程中的作用的重要性。本研究没有发现提供反馈的通用方法，表明应该在一开始就讨论相互反馈的期望。PPI反馈需要成为研究过程中不可或缺的一部分，并分配适当的时间和资源。PPI反馈可以被视为研究中成熟、嵌入PPI的关键指标。
Reciprocal relationships between researchers and patient and public involvement (PPI) contributors can enable successful PPI in research. However, research and anecdotal evidence suggest that researchers do not commonly provide feedback to PPI contributors thus preventing them from knowing whether, how or where their contributions were useful to researchers and research overall. The aim of this study was to explore the variation, types, importance of, and satisfaction with feedback given by researchers to PPI contributors in six PPI groups in England, and identify the barriers to the process of feedback. An explanatory mixed methods sequential study design with a questionnaire survey followed by semi‐structured interviews with researchers and PPI contributors in six PPI groups. PPI contributors were involved in all stages of the research process. Researchers do not routinely give feedback to PPI contributors. Feedback was found to have different meanings: an acknowledgement, impact and study success and progress. PPI contributors who receive feedback are motivated for further involvement; it supports their learning and development and prompts researchers to reflect on PPI impact. The importance of the role of a PPI lead or coordinator to facilitate the process of providing feedback was also highlighted. This study found no generic way to give feedback indicating that mutual feedback expectations should be discussed at the outset. PPI feedback needs to become integral to the research process with appropriate time and resources allocated. PPI feedback can be seen as a key indicator of mature, embedded PPI in research.
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影响因子：
--
作者：
Green G
通讯作者：
Green G
影响因子：
4.1
作者：
Ives, Jonathan;Damery, Sarah;Redwod, Sabi
通讯作者：
Redwod, Sabi
影响因子：
2.4
作者：
Edelman N;Barron D
通讯作者：
Barron D
影响因子：
3.4
作者：
Fetters, Michael D.;Curry, Leslie A.;Creswell, John W.
通讯作者：
Creswell, John W.
DOI：
10.1080/01944366908977225
发表时间：
1969-01-01
期刊：
JOURNAL OF THE AMERICAN INSTITUTE OF PLANNERS
影响因子：
--
作者：
ARNSTEIN, SR
通讯作者：
ARNSTEIN, SR