Aging with HIV and disability: The role of uncertainty

Aging with HIV and disability: The role of uncertainty
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DOI:
10.1080/09540121.2013.811209
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发表时间:
2014-02-01
影响因子:
1.7
通讯作者:
Gervais, Nicole
Gervais, Nicole
中科院分区:
医学4区
文献类型:
--
作者:
Solomon, Patricia;O'Brien, Kelly;Gervais, Nicole

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由于治疗的进步,艾滋病毒感染者的寿命更长,并出现与病毒、药物不良副作用和衰老有关的残疾。与疾病相关的不确定性已被证明有助于残疾;然而,人们对与艾滋病毒相关的不确定性知之甚少。这项研究的目的是描述不确定性对老年艾滋病毒感染者所经历的残疾的贡献。49名50岁或50岁以上的艾滋病毒感染者参加了深入的定性访谈,探讨社会参与和残疾的各个方面。访谈的透明度采用扎根理论方法进行分析。与老年人有关的不确定性在以下主题中进行了描述:健康挑战的来源;保健提供者与年龄有关的知识和技能;财务不确定性;向退休过渡;适当的长期住房,以及谁来照顾他们的不确定性。虽然艾滋病毒的发作性质并不直接归因于衰老,但它使许多人无法确定下一次发病的时间,往往导致无法提前计划。研究结果强调,需要重点关注成功和积极老龄化的概念,以期确定有效的干预措施,减少残疾,提高感染艾滋病毒的老年人的整体健康。这项工作建立在以前的研究,突出了不确定性在残疾经验的作用,通过确定特定的老年人与艾滋病毒老化的年龄相关的组件。
Due to advances in treatment, people with HIV are living longer and developing disabilities related to the virus, adverse side effects of medications, and aging. Illness-related uncertainty has been shown to contribute to disablement; however, there is little understanding of the uncertainties related to aging with HIV. The purpose of this research was to describe the contribution of uncertainty to the disability experienced by older adults living with HIV. Forty-nine men and women living with HIV and 50 years or older participated in in-depth qualitative interviews exploring various aspects of social participation and disability. Transcriptions of the interviews were analyzed using a grounded theory approach. Age-related uncertainties were described in the following themes: source of health challenge; health providers' age-related knowledge and skills; financial uncertainty; transition to retirement; appropriate long-term housing, and uncertainty over who would care for them. While not directly attributable to aging, the episodic nature of HIV left many with uncertainties related to when their next episode of illness would occur and often resulted in an inability to plan in advance. Results highlight the need to focus on the notion of successful and positive aging with the view to identifying effective interventions that reduce disability and enhance the overall health of older adults with HIV. This work builds on previous studies highlighting the role of uncertainty in the disability experience by identifying age-related components specific to older adults aging with HIV.