'Something needs to change': Mental health experiences of young autistic adults in England
'Something needs to change': Mental health experiences of young autistic adults in England
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DOI：
10.1177/1362361318757048
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发表时间：
2019-02-01
期刊：
影响因子：
5.2
通讯作者：
Pellicano, Elizabeth
中科院分区：
文献类型：
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作者：
Crane, Laura;Adams, Fern;Pellicano, Elizabeth
年轻人心理健康问题的发生率和患病率很高，该群体在寻求帮助方面存在一些障碍。据报道，自闭症儿童和成人中心理健康问题的发生率也很高。总的来说，年轻的自闭症患者在心理健康方面可能是一个特别脆弱的群体。然而，关于年轻自闭症成人（16-25 岁）的心理健康需求和经历的研究却非常少。我们采用基于社区的参与性研究（CBPR）方法，即学术研究人员和年轻自闭症成年人以公平的研究伙伴关系进行合作，我们探讨了年轻自闭症患者的心理健康问题经历以及他们对针对这些问题寻求的支持（如果有）的看法。共有 130 名年轻自闭症患者参与了这项研究：其中 109 人完成了在线调查，21 人参加了详细访谈。结果突显了年轻的自闭症患者如何难以评估自己的心理健康状况，遭受严重的耻辱，并且在尝试获得心理健康支持时经常面临严重的障碍。研究结果还表明，倾听年轻自闭症患者的心声并向其学习对于确保满足他们的心理健康需求至关重要。
There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16-25 years). Adopting a community-based participatory research (CBPR) approach - in which academic researchers and young autistic adults collaborated in an equitable research partnership - we explored young autistic people's experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to - and learning from - young autistic people is crucial in ensuring that their mental health needs are met.