Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom
Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom
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DOI：
10.1007/s10803-014-2161-3
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发表时间：
2014-12-01
影响因子：
3.9
通讯作者：
Crane, Laura
中科院分区：
文献类型：
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作者：
Jones, Lydia;Goddard, Lorna;Crane, Laura
共有128名患有高功能自闭症谱系障碍的成年人接受了调查，了解他们获得诊断的过程以及随后获得的支持。结果表明，诊断的途径相当不同，对诊断过程的总体满意度参差不齐；40%的受访者对诊断过程“非常/相当”不满意，47%的受访者“非常/相当”满意。延误的程度、看到的专业人员数量、诊断时提供的信息质量和诊断后支持的水平预测了对诊断过程的总体满意度。对于诊断路径的所有阶段，都注意到了重要的领域和改进建议。受访者的抑郁情绪和焦虑程度也高于平均水平，在这方面要求更多的支持。
A total of 128 adults with high-functioning autism spectrum disorders were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40 % of respondents were 'very/quite' dissatisfied, whilst 47 % were 'very/quite' satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Respondents also displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.