One-third of the new paediatric patients with sickle cell disease in The Netherlands are immigrants and do not benefit from neonatal screening
One-third of the new paediatric patients with sickle cell disease in The Netherlands are immigrants and do not benefit from neonatal screening
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DOI：
10.1136/adc.2009.165290
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发表时间：
2010-10-01
影响因子：
5.2
通讯作者：
Verkerk, P. H.
中科院分区：
文献类型：
--
作者：
Peters, M.;Fijnvandraat, K.;Verkerk, P. H.
目的评估荷兰儿童镰状细胞病（SCD）的患病率。为了估计每年新诊断为SCD的儿童人数和通过新生儿筛查诊断的比例为了估计在综合护理环境中接受儿科护理的SCD儿童的比例，通过捕获-再捕获方法分析了两个来源的数据，儿科实践调查（n=107）和实验室数据库（n=20）。
Objectives To estimate the prevalence of children with sickle cell disease (SCD) in The Netherlands. To estimate the annual number of children newly diagnosed as having SCD and the proportion with diagnoses through neonatal screening To estimate the proportion of children with SCD receiving paediatric care in a comprehensive care setting.Design Data from two sources, a survey of paediatric practices (n=107) and a laboratory database (n=20), were analysed by the capture-recapture method.Participants Children with SCD aged