Alignment between expectations and experiences of egg donors: what does it mean to be informed?
Alignment between expectations and experiences of egg donors: what does it mean to be informed?
复制标题
DOI：
10.1016/j.rbms.2020.08.003
复制
发表时间：
2021-03
影响因子：
--
通讯作者：
Baltzell K
中科院分区：
文献类型：
--
作者：
Tober D;Garibaldi C;Blair A;Baltzell K
本研究评估了卵子捐赠者在成为卵子捐赠者的过程中对直接和长期风险信息的回顾性看法，以及这种看法与他们的经验和对卵子捐赠的期望的一致性。数据收集使用匿名在线调查。分析了捐卵者的人口统计学资料，对立即并发症和长期风险的了解，以及他们的期望和经验之间的一致性。总共有375名现任和前任卵子捐赠者参加了一项关于他们的决定和经历的在线调查。参与者的年龄从18岁到57岁不等，补偿捐赠者首次捐赠的中位年龄为24岁。大多数参与者（81%）在美国提供鸡蛋，86.1%的参与者报告获得了直接报销以外的补偿。总体而言，66%的卵子捐赠者表示，他们的经历符合他们在知情同意过程中被告知的期望。虽然大多数参与者（64.8%）对潜在的短期风险有充分的了解，但55.2%的参与者对潜在的长期风险没有充分的了解。研究结果表明，虽然大多数卵子捐赠者对直接并发症感到知情，但对潜在长期风险的了解存在差距。这项研究的结果提供了关于卵子捐赠者如何理解风险和益处的见解，并可用于改善咨询和知情同意书和流程。研究结果还表明，需要对卵子捐赠者的健康和福祉进行纵向研究，以改善知情同意。
This study evaluated the retrospective perceptions of egg donors regarding information communicated about immediate and long-term risks during the process of becoming an egg donor, and the alignment of that perception with their experiences and expectations of egg donation. Data were collected using an anonymous online survey. Egg donors’ demographics, perceptions of being informed about immediate complications and long-term risks, and alignment between their expectations and experiences were analysed. In total, 375 current and former egg donors participated in an online survey about their decisions and experiences. Participants ranged in age from 18 to 57 years, with a median age of 24 years at first donation for compensated donors. The majority of the participants (81%) provided eggs in the USA, and 86.1% reported being compensated beyond direct reimbursement. Overall, 66% of egg donors surveyed reported feeling that their experiences matched their expectations based upon what they had been told during the informed consent process. While most participants (64.8%) felt well informed about potential short-term risks, 55.2% did not feel well informed about potential long-term risks. The findings indicate that while the majority of egg donors felt informed about immediate complications, there are gaps in knowledge about potential long-term risks. Results from this research provide insight into how egg donors understand risks and benefits, and can be used to improve counselling and informed consent forms and processes. The findings also indicate that longitudinal research on the health and well-being of egg donors is needed in order to improve informed consent.