UK policy on social networking sites and online health: From informed patient to informed consumer?

UK policy on social networking sites and online health: From informed patient to informed consumer?
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DOI:
10.1177/2055207615592513
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发表时间:
2015-01
期刊:
影响因子:
3.9
通讯作者:
Gunter B
Gunter B
中科院分区:
医学3区
文献类型:
--
作者:
Hunt D;Koteyko N;Gunter B

文献摘要

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社交网站为医护人员、病人和公众之间的沟通提供了新的机会。在这样做时,它们有可能促进公众获得保健信息、同行支助网络、卫生政策论坛和在线咨询。政府政策和专业组织的指导已经开始解决这些技术在医疗保健领域的潜力及其对用户的责任。这篇评论论文采用话语分析框架来分析政策文件,批判性地审视了最近政府和专业政策文件中对社交网站的讨论。它特别关注这些组织声称谁应该使用社交媒体,出于什么目的,以及使用社交媒体对患者和组织本身的预期结果。最近的政策文件已配置社交媒体作为一种新的手段,以收集病人的反馈意见,对医疗保健的遭遇和沟通的医疗保健服务信息,病人和公众可以“授权”作出负责任的决定。这些政策将社会媒体作为消费者选择的工具,鼓励非营利组织和商业组织在电子卫生领域发挥更大作用,从而使卫生信息市场化。与此同时,目前的政策在很大程度上忽视了社交媒体在为长期疾病患者提供持续支持和自我管理方面的作用。
Social networking sites offer new opportunities for communication between and amongst health care professionals, patients and members of the public. In doing so, they have the potential to facilitate public access to health care information, peer-support networks, health policy fora and online consultations. Government policies and guidance from professional organisations have begun to address the potential of these technologies in the domain of health care and the responsibilities they entail for their users. Adapting a discourse analytic framework for the analysis of policy documents, this review paper critically examines discussions of social networking sites in recent government and professional policy documents. It focuses particularly on who these organisations claim should use social media, for what purposes, and what the anticipated outcomes of use will be for patients and the organisations themselves. Recent policy documents have configured social media as a new means with which to harvest patient feedback on health care encounters and communicate health care service information with which patients and the general public can be ‘empowered’ to make responsible decisions. In orienting to social media as a vehicle for enabling consumer choice, these policies encourage the marketization of health information through a greater role for non-profit and commercial organisations in the eHealth domain. At the same time, current policy largely overlooks the role of social media in mediating ongoing support and self-management for patients with long-term conditions.