Survivorship Care Preferences: A pilot study of young adults with cancer

Survivorship Care Preferences: A pilot study of young adults with cancer
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幸存者护理偏好:针对年轻癌症患者的初步研究

DOI:
10.1188/17.cjon.e71-e78
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发表时间:
2017
影响因子:
1.1
通讯作者:
N. Kadan
N. Kadan
中科院分区:
医学4区
文献类型:
--
作者:
Adrienne S Viola;H. Mitchell;A. Salner;E. Gillan;Jaime Rotatori;B. Cartmel;S. Santacroce;Xiaomei Ma;N. Kadan

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背景:青少年和年轻人(AYAs)面临癌症治疗的身体,社会和认知晚期并发症的风险增加。需要制定战略,以更好地参与AYAs的生存研究。目的:本研究旨在确定在诊断后六个月内招募AYA进行生存研究的可行性,并评估他们的健康问题和生存护理偏好。方法:从2008 - 2011年在康涅狄格州的三家医院诊断为白血病、淋巴瘤或肉瘤的15 - 34岁患者被确定并通过邮件招募。参与者和他们的医生接受了生存护理计划。参与者在诊断后6个月和18个月完成调查。调查结果:招募AYA进行生存研究仍然具有挑战性,即使在诊断后不久接近他们。护士和其他医疗团队成员需要新的策略来让AYA参与生存护理和研究。
BACKGROUND: Adolescents and young adults (AYAs) face increased risk for physical, social, and cognitive late complications of cancer therapy. Strategies are needed to better engage AYAs in survivorship research. OBJECTIVES: This study aimed to determine the feasibility of enrolling AYAs within six months of diagnosis to a survivorship study and assess their health concerns and survivorship care preferences. METHODS: Patients aged 15‐34 years who were diagnosed with leukemia, lymphoma, or sarcoma at three Connecticut hospitals from 2008‐2011 were identified and recruited by mail. Participants and their physicians received a survivorship care plan. Participants completed surveys at 6 months and 18 months after diagnosis. FINDINGS: Recruiting AYAs to survivorship research remains challenging, even when approaching them soon after diagnosis. Novel strategies are needed for nurses and other healthcare team members to engage AYAs in survivorship care and research.
DOI: 10.1200/jco.2008.21.1433
发表时间: 2009-05-10
影响因子: 45.3
作者:
Zeltzer, Lonnie K.;Recklitis, Christopher;Krull, Kevin
通讯作者: Krull, Kevin
初级保健医生网络中参与基因研究的预测因素。
DOI: --
发表时间: 2000
期刊: Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology.
影响因子: --
作者:
Helmes,AW;Bowen,DJ;Bowden,R;Bengel,J
通讯作者: Bengel,J